Papers matching “data collection standardization” 938
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Unity in Variety: Developing a collection description standard by consensus2020 Biodiversity Information Science and Standards article Computer Science Research Data Management Practices Open access
Matt Woodburn, Deborah L Paul, Wouter Addink, Steve Baskauf, Stanley Blum, Cat Chapman, +12 more
4citations -
Continuity of care in Klinefelter syndrome: age-adapted modules for standardized clinical data collection (I-KS)2025 Endocrine Connections article Health Professions Adolescent and Pediatric Healthcare Open access
Corinna Grasemann, Claus Højbjerg Gravholt, Lise Aksglæde, Angela Katrina Lucas-Herald, Malika Alimussina, Claudia Boettcher, +9 more
3citations -
The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes2020 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access
Salma Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L T van den Akker, +10 more
52citations -
Reanalysis of whole-exome sequencing (WES) data of children with neurodevelopmental disorders in a standard patient care context2023 European Journal of Pediatrics article Biochemistry, Genetics and Molecular Biology Genomics and Rare Diseases Open access
Michelle van Slobbe, Arie van Haeringen, Lisenka E.L.M. Vissers, Emilia K. Bijlsma, Julie W. Rutten, Manon Suerink, +3 more
29citations -
Reanalysis of whole-exome sequencing (WES) data of children with neurodevelopmental disorders in a standard patient care context2023 Research Square preprint Biochemistry, Genetics and Molecular Biology Genomics and Rare Diseases Open access
Michelle van Slobbe, Arie van Haeringen, Lisenka E.L.M. Vissers, Emilia K. Bijlsma, Julie W. Rutten, Manon Suerink, +3 more
4citations -
What is the Status of Global Digitisation? MIDS as an Institutional and Global Digitisation Standard2025 Biodiversity Information Science and Standards article Computer Science Research Data Management Practices Open access
Elspeth Haston, Cat Chapman, Ben Norton, Stefan Seifert, Sam Leeflang, Wouter Addink, +1 more
0citations -
Detection of Carbon Monoxide in the Atmosphere of WASP-39b Applying Standard Cross-correlation Techniques to JWST NIRSpec G395H Data2023 The Astrophysical Journal Letters article Physics and Astronomy Stellar, planetary, and galactic studies Open access
E. Esparza-Borges, Mercedes López‐Morales, Jéa Adams Redai, Ε. Πάλλη, James A. Kirk, N. Casasayas-Barris, +27 more
39citations -
Detection of Carbon Monoxide in the Atmosphere of WASP-39b Applying Standard Cross-Correlation Techniques to JWST NIRSpec G395H Data2023 arXiv (Cornell University) preprint Physics and Astronomy Stellar, planetary, and galactic studies Open access
E. Esparza-Borges, Mercedes López‐Morales, Jéa I. Adams Redai, Ε. Πάλλη, James A. Kirk, N. Casasayas-Barris, +27 more
1citations -
Data Quality and Cost-effectiveness Analyses of Electronic and Paper-Based Interviewer-Administered Public Health Surveys: Systematic Review2020 Journal of Medical Internet Research review Social Sciences Survey Methodology and Nonresponse Open access
Atinkut Alamirrew Zeleke, Tolga P Naziyok, Fleur Fritz, Lara Christianson, Rainer Röhrig
27citations -
Data harmonization and federated learning for multi-cohort dementia research using the OMOP common data model: A Netherlands consortium of dementia cohorts case study2024 Journal of Biomedical Informatics article Computer Science Privacy-Preserving Technologies in Data Open access
Pedro Mateus, Justine E. F. Moonen, Magdalena Beran, Eva A. Jaarsma, Sophie M. van der Landen, Joost Heuvelink, +11 more
31citations -
EP973 - ECE_3259 - Developing a standard dataset in the European Registries for Rare Endocrine and Bone Conditions (EuRREB): Multiple Endocrine Neoplasia type 1 (MEN1) module2026 European Journal of Endocrinology conference-abstract Medicine Neuroendocrine Tumor Research Advances Open access
Medard F. M. van den Broek, М. С. Черенько, Natasha M. Appelman‐Dijkstra, Francesca Giusti, Francesca Marini, Aurilia Cinzia, +7 more
0citations -
Using Existing Clinical Information Models for Dutch Quality Registries to Reuse Data and Follow COUMT Paradigm2023 Applied Clinical Informatics article Health Professions Electronic Health Records Systems Open access
Maike H. J. Schepens, Annemarie C. Trompert, Miranda L. van Hooff, Erik van der Velde, Marjon Kallewaard, Iris J. A. M. Verberk-Jonkers, +5 more
1citations -
Repurposing Registries: Completeness of Real‐World Data for Regulatory and HTA Purposes in Three Cancer‐Focused Registries2026 Clinical Pharmacology & Therapeutics article Health Professions Electronic Health Records Systems Open access
Manon C. Wilpshaar, Doranne L. Hilarius, Luísa Prada, Ansgar Weltermann, Christine Leopold
1citations