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1796P Real-world analysis of metastatic hormone-sensitive prostate cancer: Are randomized clinical trials more trustworthy? Insights from PIONEER, the European network of excellence for big data in prostate cancer
Juan Gómez Rivas, Rossella Nicoletti, Asieh Golozar, Carl Steinbeißer, Bertrand De Meulder, Robert J. Snijder, +6 more
3citations -
Biological DMARD survival in rheumatoid arthritis patients in clinical practice: a METEOR registry data analysis2025 Rheumatology International article Medicine Rheumatoid Arthritis Research and Therapies Open access
Vicenç Torrente-Segarra, Tom W. J. Huizinga, Karen Salomon-Escoto, J. Pereira da Silva, Douglas James Veale, Samar Al Emadi, +1 more
1citations -
The PHF21A neurodevelopmental disorder: an evaluation of clinical data from 13 patients2023 Clinical Dysmorphology article Biochemistry, Genetics and Molecular Biology Genomic variations and chromosomal abnormalities Open access
Rebecca L. Poole, Emilia K. Bijlsma, Gunnar Houge, Gabriela E. Jones, Violeta Mikštienė, Eglė Preikšaitienė, +1 more
5citations -
Real-world bleeding rates on emicizumab: the value of using nationwide digital treatment diary data in clinical research2025 Research and Practice in Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Martijn R Brands, Elisabeth M. Taal, Martijn A. H. Oude Voshaar, Mariette H E Driessens, Caroline M E van Veen, Marieke J. H. A. Kruip, +9 more
8citations -
Evaluation of BRCA1/2 testing rates in epithelial ovarian cancer patients: lessons learned from real-world clinical data2025 Familial Cancer article Biochemistry, Genetics and Molecular Biology BRCA gene mutations in cancer Open access
Lieke Lanjouw, Claire J.H. Kramer, Arja ter Elst, Geertruida H. de Bock, Katja N. Gaarenstroom, Refika Yigit, +10 more
2citations -
Fludarabine-treosulfan versus fludarabine-melphalan or busulfan-cyclophosphamide conditioning in older AML or MDS patients – A clinical trial to registry data comparison2024 Bone Marrow Transplantation article Medicine Hematopoietic Stem Cell Transplantation Open access
Dietrich Wilhelm Beelen, Simona Iacobelli, Linda Köster, Dirk‐Jan Eikema, Anja van Biezen, Friedrich Stölzel, +10 more
12citations -
Clinical Characteristics of Pathogenic ACAN Variants and 3-Year Response to Growth Hormone Treatment: Real-World Data2024 Hormone Research in Paediatrics article Medicine Growth Hormone and Insulin-like Growth Factors Open access
Judith S. Renes, Ardine Reedijk, Monique Losekoot, Sarina G. Kant, Manouk van der Steen, Daniëlle C M van der Kaay, +2 more
12citations -
Data from network meta-analyses can inform clinical practice guidelines and decision-making in diabetes management: perspectives of the taskforce of the guideline workshop
Antonio Ceriello, Helena W. Rodbard, Tadej Battelino, Frank Chip Brosius, Francesco Cosentino, Jennifer Green, +13 more
9citations -
The quest for balance between capturing data and model complexity: A quantitative clinical pharmacology approach applied to monoclonal antibodies2023 CPT Pharmacometrics & Systems Pharmacology article Medicine Monoclonal and Polyclonal Antibodies Research Open access
Michelle A. Pressly, Lambertus A. Peletier, Songmao Zheng, Vishnu Dutt Sharma, Yi Ting Lien, Weirong Wang, +2 more
7citations -
Topic: AS06-Prognosis/AS06a-Prognostic factors of outcome and risk assessment: COMPARISON OF PROGNOSTICATION BY IPSS-M, IPSS-R AND AIPSS-MDS IN THE CONTEXT OF LIMITED AVAILABILITY OF MOLECULAR DATA IN DAILY CLINICAL PRACTICE
F. Schulz, Carolin Kellersmann, B. Betz, B. Hildebrandt, F. Thol, M. Heuser, +10 more
0citations -
Impact of prior SARS-CoV-2 acquisition on binding and neutralizing antibody responses following COVID-19 vaccination: A cross-protocol analysis of individual-level data from six phase 3 clinical trials
Aaron Hudson, Scott A. Borgetti, Anne-Marie Rick, Matthew B. Laurens, Samuel T. Robinson, Cynthia L. Gay, +23 more
0citations -
314P Protein biomarkers predicting clinical milestones in Duchenne muscular dystrophy combining natural history and real-world data2024 Neuromuscular Disorders article Biochemistry, Genetics and Molecular Biology Muscle Physiology and Disorders
Pietro Spitali, N.A. Ikelaar, Alison M. Barnard, S.W.M. Eng, S. Hosseini Vajargah, Hermien E. Kan, +2 more
0citations -
Implementation of good clinical practice in clinical research in the context of limited resources settings: Lessons learnt from the freeBILy trial using an embedded mixed methods approach
Leonard Gunga, Pia Rausche, Rivo Andry Rakotoarivelo, Mandranto Rasamoelina, Jeannine Solonirina, Elveric Fesia Ratiaharison, +15 more
1citations -
De-novo FAIRification via an Electronic Data Capture system by automated transformation of filled electronic Case Report Forms into machine-readable data2021 Journal of Biomedical Informatics article Computer Science Research Data Management Practices Open access
Martijn G. Kersloot, Annika Jacobsen, Karlijn H.J. Groenen, Bruna dos Santos Vieira, Rajaram Kaliyaperumal, Ameen Abu–Hanna, +5 more
28citations -
CMEO: a metadata-centric ontology for clinical studies exploration and harmonization assessment2025 BMC Medical Informatics and Decision Making article Biochemistry, Genetics and Molecular Biology Biomedical Text Mining and Ontologies Open access
Komal Gilani, Marlo Verket, Hans‐Peter Brunner‐La Rocca, Enrico Nicolis, Katharina Marx-Schütt, Visara Urovi, +1 more
1citations -
How Patient Organizations Can Drive FAIR Data Efforts to Facilitate Research and Health Care: A Report of the Virtual Second International Meeting on Duchenne Data Sharing, March 3, 20212021 Journal of Neuromuscular Diseases article Computer Science Research Data Management Practices Open access
Nawel Lalout, Γεώργιος Παλιούρας, Elizabeth Vroom, Peter A.C. ’t Hoen, Marco Roos
20citations -
A review of information sources and analysis methods for data driven decision aids in child and adolescent mental health services2024 International Journal of Medical Informatics article Computer Science Machine Learning in Healthcare Open access
Kaban Koochakpour, Øystein Nytrø, BENNETT L. LEVENTHAL, Odd Sverre Westbye, Thomas Brox Røst, Roman A. Koposov, +4 more
2citations -
Demographic and Clinical Characteristics of People with Activated Phosphoinositide 3-Kinase Delta Syndrome in the APDS Characterization and Clinical Outcomes Immunologic Registry2025 Journal of Human Immunity article Immunology and Microbiology Immunodeficiency and Autoimmune Disorders Open access
Nicholas Hartog, Valeria Duran, Andrew Frick, Kelli Wong Williams, Nicholas L. Rider, Jason P. Raasch, +2 more
0citations -
Multi-stakeholder sessions on major innovation topics in rare disease clinical trials2024 Orphanet Journal of Rare Diseases article Mathematics Statistical Methods in Clinical Trials Open access
Daniel Bodden, Stefanie Schoenen, Stephanie Wied, Johan Verbeeck, Maya Dirani, Nicole Maria Heussen, +3 more
3citations