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ToolPool Gesundheitsforschung – A Repository for Software and Services Focused on Supporting Clinical and Epidemiological Research2022 Studies in health technology and informatics book-chapter Computer Science Research Data Management Practices Open access
Matthias Löbe, Martin Bialke, Jonas Bienzeisler, Johannes Drepper, Thomas Ganslandt, Sophie Haderer, +6 more
0citations -
bio.tools: an expanded web service for research software in the life sciences2026 Nucleic Acids Research article Decision Sciences Scientific Computing and Data Management Open access
Ana Mendes, Hans Ienasescu, Christian A T Andersen, Erin Calhoun, Piotr Jaroslaw Chmura, Kathleen Collier, +17 more
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Applying the FAIR Data Principles to the Registry of Vascular Anomalies (VASCA)2020 Studies in health technology and informatics book-chapter Computer Science Research Data Management Practices Open access
Bruna dos Santos Vieira, Karlijn H.J. Groenen, Peter A.C. ’t Hoen, Annika Jacobsen, Marco Roos, Rajaram Kaliyaperumal, +2 more
4citations -
The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience2025 Journal of Neuromuscular Diseases article Computer Science Research Data Management Practices Open access
Nawel Lalout, Mark D. Wilkinson, Dagmar Wandrei, Adrian Tassoni, António Atalaia, Alberto Cámara Ballesteros, +11 more
1citations -
From registration to insight: how STRONG AYA transforms registry data to enhance decision-support tools for adolescent and young adult oncology2026 ESMO Real World Data and Digital Oncology article Medicine Childhood Cancer Survivors' Quality of Life Open access
Nicola Hughes, Joshi Hogenboom, R. Carter, Lee J Norman, Varsha Gouthamchand, Oana C. Lindner, +14 more
0citations -
Rationale and design of the CONFIRM2 (Quantitative COroNary CT Angiography Evaluation For Evaluation of Clinical Outcomes: An InteRnational, Multicenter Registry) study2023 Journal of cardiovascular computed tomography article Medicine Cardiac Imaging and Diagnostics Open access
Alexander R. van Rosendael, Tami R. Crabtree, Jeroen Joost Bax, Rine Nakanishi, Saima Mushtaq, Gianluca Pontone, +25 more
19citations -
Treatment exit options for non-infectious uveitis registry: participant characteristics at 3 years2024 British Journal of Ophthalmology article Medicine Ocular Diseases and Behçet’s Syndrome Open access
D Fink, Jennifer Dell, Carsten Heinz, Maximilian W. M. Wintergerst, Tobias Höller, Moritz Berger, +7 more
2citations -
Designing a User-Friendly Data Request Management System for a Growing Health Data Network – A Case Study in the AKTIN Registry2024 Studies in health technology and informatics book-chapter Health Professions Electronic Health Records Systems Open access
Alexander Kombeiz, Jonas Bienzeisler, Raphael W. Majeed, Rainer Röhrig
1citations -
ABS0718 AGE AS THE MAIN PREDICTOR FOR RHEUMATOID ARTHRITIS INITIAL TREATMENT: A MACHINE LEARNING ANALYSIS USING DATA FROM METEOR REGISTRY2025 Annals of the Rheumatic Diseases conference-abstract Medicine Rheumatoid Arthritis Research and Therapies Open access
David Vega‐Morales, Sytske Anne Bergstra, A Chopra, Wendy Marisol Orzúa-de la Fuente, Elsa Vieira‐Sousa, Nimmisha Govind
0citations -
An extraction pipeline for analysis of hematopoietic stem cell transplantation data2026 Bone Marrow Transplantation article Medicine Hematopoietic Stem Cell Transplantation Open access
Erik G. J. von Asmuth, Constantijn J.M. Halkes, Jurjen Versluis, Dirk‐Jan Eikema, Emanuele Angelucci, Ali A. Bazarbachi, +13 more
1citations -
Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries2022 Orphanet Journal of Rare Diseases article Computer Science Research Data Management Practices Open access
Bruna dos Santos Vieira, César H. Bernabé, Shuxin Zhang, Haitham Abaza, Nirupama Benis, Alberto Cámara, +9 more
41citations