Building Expertise on FAIR Through Evolving Bring Your Own Data (BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution
Data Intelligence, vol. 6, pp. 429–456
Abstract
ABSTRACT Since 2014, “Bring Your Own Data” workshops (BYODs) have been organised to inform people about the process and benefits of making resources Findable, Accessible, Interoperable, and Reusable (FAIR, and the FAIRification process). The BYOD workshops’ content and format differ depending on their goal, context, and the background and needs of participants. Data-focused BYODs educate domain experts on how to make their data FAIR to find new answers to research questions. Management-focused BYODs promote the benefits of making data FAIR and instruct project managers and policy-makers on the characteristics of FAIRification projects. Software-focused BYODs gather software developers and experts on FAIR to implement or improve software resources that are used to support FAIRification. Overall, these BYODs intend to foster collaboration between different types of stakeholders involved in data management, curation, and reuse (e.g. domain experts, trainers, developers, data owners, data analysts, FAIR experts). The BYODs also serve as an opportunity to learn what kind of support for FAIRification is needed from different communities and to develop teaching materials based on practical examples and experience. In this paper, we detail the three different structures of the BYODs and describe examples of early BYODs related to plant breeding data, and rare disease registries and biobanks, which have shaped the structure of the workshops. We discuss the latest insights into making BYODs more productive by leveraging our almost ten years of training experience in these workshops, including successes and encountered challenges. Finally, we examine how the participants’ feedback has motivated the research on FAIR, including the development of workflows and software.
Authors 32
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Leiden University · Leiden University Medical Center
Affiliation as printed
Biosemantics Group, Department of Human Genetics, Leiden University Medical Centre, Leiden, The Netherlands
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Royal Free London NHS Foundation Trust · The Royal Free Hospital · University College London
Affiliation as printed
NIHR Academic Fellow in General Practice, University College London and The Royal Free NHS Foundation Trust
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Leiden University · Leiden University Medical Center
Affiliation as printed
Biosemantics Group, Department of Human Genetics, Leiden University Medical Centre, Leiden, The Netherlands
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Affiliation as printed
National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy
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Amsterdam UMC Location University of Amsterdam · Amsterdam Public Health
Affiliation as printed
Amsterdam Public Health, Methodology & Digital Health, Amsterdam, The Netherlands
Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Meibergdreef 9, Amsterdam, The Netherlands
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Affiliation as printed
Health-RI, Utrecht, The Netherlands
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Amsterdam UMC Location University of Amsterdam · Amsterdam Public Health
Affiliation as printed
Amsterdam Public Health, Methodology & Digital Health, Amsterdam, The Netherlands
Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Meibergdreef 9, Amsterdam, The Netherlands
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Leiden University · Leiden University Medical Center · University of Twente
Affiliation as printed
Biosemantics Group, Department of Human Genetics, Leiden University Medical Centre, Leiden, The Netherlands
Semantics, Services and Cybersecurity group, University of Twente, Enschede, The Netherlands
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Amsterdam UMC Location University of Amsterdam · Amsterdam Public Health
Affiliation as printed
Amsterdam Public Health, Methodology & Digital Health, Amsterdam, The Netherlands
Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Meibergdreef 9, Amsterdam, The Netherlands
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Radboud University Medical Center · Radboud Institute for Health Sciences
Affiliation as printed
Department of Medical BioSciences, Radboud University Medical Center, Nijmegen, The Netherlands
Department of Medical Imaging, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands
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Radboud University Medical Center · Duchenne Parent Project
Affiliation as printed
Department of Medical BioSciences, Radboud University Medical Center, Nijmegen, The Netherlands
The Duchenne Parent Project, Veneendaal, The Netherlands
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Radboud University Medical Center
Affiliation as printed
Department of Medical BioSciences, Radboud University Medical Center, Nijmegen, The Netherlands
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Instituto Nacional de Investigación y Tecnología Agraria y Alimentaria · Centre for Plant Biotechnology and Genomics · Universidad Politécnica de Madrid
Affiliation as printed
Departamento de Biotecnología-Biología Vegetal, Escuela Técnica Superior de Ingeniería Agronómica, Alimentaria y de Biosistemas, Centro de Biotecnología y Genómica de Plantas. Universidad Politécnica de Madrid (UPM) - Instituto Nacional de Investigacíon y Tecnología Agraria y Alimentaria-CSIC (INIA-CSIC). Campus Montegancedo, Pozuelo de Alarcón (Madrid), Spain
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Amsterdam UMC Location University of Amsterdam · Amsterdam Public Health · Castor
Affiliation as printed
Amsterdam Public Health, Methodology & Digital Health, Amsterdam, The Netherlands
Castor, Amsterdam, The Netherlands
Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Meibergdreef 9, Amsterdam, The Netherlands
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Affiliation as printed
Department of Bioinformatics - BiGCaT, Maastricht University, Maastricht, The Netherlands
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University Medical Center Groningen · University of Groningen
Affiliation as printed
University Medical Center Groningen, University of Groningen, Groningen, The Netherlands
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Affiliation as printed
Department of Bioinformatics - BiGCaT, Maastricht University, Maastricht, The Netherlands
Maastricht Centre for Systems Biology (MaCSBio), Maastricht University, Maastricht, The Netherlands
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Affiliation as printed
Department of Computer Science, Heriot-Watt University, Edinburgh, UK
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Affiliation as printed
INSERM, US14—Orphanet, Plateforme Maladies Rares, Paris, France
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Affiliation as printed
Centre for Digital Scholarship, Leiden University Libraries, The Netherlands
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Utrecht University · University Medical Center Utrecht
Affiliation as printed
Center for Molecular Medicine, Cancer Genomics Netherlands, Department of Genetics, University Medical Center Utrecht, University Utrecht, The Netherlands
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Affiliation as printed
University of Aveiro, DETI/IEETA, Aveiro, Portugal
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Leiden University · Leiden University Medical Center
Affiliation as printed
Biosemantics Group, Department of Human Genetics, Leiden University Medical Centre, Leiden, The Netherlands
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Leiden University · GO FAIR Foundation
Affiliation as printed
GO FAIR Foundation, Leiden, The Netherlands
The Leiden Academic Center for Drug Research, Leiden, The Netherlands
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Affiliation as printed
National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy
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Affiliation as printed
Micelio, Ekeren-Antwerp, Belgium
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Instituto Nacional de Investigación y Tecnología Agraria y Alimentaria · Centre for Plant Biotechnology and Genomics · Universidad Politécnica de Madrid
Affiliation as printed
Departamento de Biotecnología-Biología Vegetal, Escuela Técnica Superior de Ingeniería Agronómica, Alimentaria y de Biosistemas, Centro de Biotecnología y Genómica de Plantas. Universidad Politécnica de Madrid (UPM) - Instituto Nacional de Investigacíon y Tecnología Agraria y Alimentaria-CSIC (INIA-CSIC). Campus Montegancedo, Pozuelo de Alarcón (Madrid), Spain
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Affiliation as printed
Department of Bioinformatics - BiGCaT, Maastricht University, Maastricht, The Netherlands
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Affiliation as printed
Health-RI, Utrecht, The Netherlands
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Leiden University · Leiden University Medical Center · GO FAIR Foundation
Affiliation as printed
Biosemantics Group, Department of Human Genetics, Leiden University Medical Centre, Leiden, The Netherlands
GO FAIR Foundation, Leiden, The Netherlands
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Leiden University · Leiden University Medical Center
Affiliation as printed
Biosemantics Group, Department of Human Genetics, Leiden University Medical Centre, Leiden, The Netherlands
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Leiden University · Leiden University Medical Center
Affiliation as printed
Biosemantics Group, Department of Human Genetics, Leiden University Medical Centre, Leiden, The Netherlands
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