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From roadmap to a sustainable end-to-end individualized therapy pathway2025 Therapeutic Advances in Rare Disease article Medicine Biomedical Ethics and Regulation Open access
Anneliene Hechtelt Jonker, Elena-Alexandra Tãtaru, David Dimmock, Alison Bateman-House, Holm Graeßner, Gareth S Baynam, +11 more
8citations -
Human Biology Research in Anthropological Review: 2025 Onwards Editorial and Polish Anthropological Society Perspectives2025 Anthropological Review article Arts and Humanities Publishing and Scholarly Communication Open access
Justyna Jolanta Miszkiewicz, Jacek Tomczyk, Francesco Maria Galassi, M Durda, Barbara Mnich, Joanna Nieczuja-Dwojacka, +1 more
0citations -
Data Resource Profile: Extramural Leiden University Medical Center Academic Network (ELAN)2024 International Journal of Epidemiology article Health Professions Medical Coding and Health Information Open access
Janet M Kist, Hedwig M. M. Vos, Rimke Cathelijne Vos, Albert T.A. Mairuhu, Jeroen Nathan Struijs, Robert R. J. M. Vermeiren, +10 more
25citations -
Leveraging synthetic data to improve open science practices in criminology – releasing a synthetic homicide dataset and dashboard2026 European Journal of Criminology article Computer Science Research Data Management Practices Open access
Katharina Krüsselmann, Jim L. Achterberg, M. Haas, Marco René Spruit, Marieke C. A. Liem
1citations -
Everywhere Everyone Everything All at Once: Integrating Data Infrastructures and Analysis Workflows for the Upscaling to Global Genetic Monitoring2025 Biodiversity Information Science and Standards article Decision Sciences Scientific Computing and Data Management Open access
Jutta Buschbom, Elizabeth R. Ellwood, Sharif Islam, Eva Häffner, Alexandra Pavlova
0citations -
The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience2025 Journal of Neuromuscular Diseases article Computer Science Research Data Management Practices Open access
Nawel Lalout, Mark D. Wilkinson, Dagmar Wandrei, Adrian Tassoni, António Atalaia, Alberto Cámara Ballesteros, +11 more
1citations -
Data Resource Profile Update: The Dutch National Intensive Care Evaluation (NICE) registry2026 International Journal of Epidemiology article Medicine Sepsis Diagnosis and Treatment Open access
Ferishta Bakhshi‐Raiez, Marie-José Roos-Blom, Dave Anton Dongelmans, Mark van den Boogaard, Bas C. T. van Bussel, Dylan W. de Lange, +12 more
0citations -
Developer perspectives on the ethics of AI-driven neural implants: a qualitative study2024 Scientific Reports article Neuroscience Neuroethics, Human Enhancement, Biomedical Innovations Open access
Odile C. van Stuijvenberg, Marike L. D. Broekman, Samantha E. C. Wolff, Annelien L. Bredenoord, Karin Rolanda Jongsma
19citations -
Investigating dysfunctional cognition change as a putative mechanism of CBT for youth anxiety, OCD and PTSD: protocol for an individual participant data meta-analysis2025 BMJ Open review Psychology Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes Open access
Ivana Burić, Anke M. Klein, Ronald M. Rapee, Brooke Levis, Philip C. Kendall, Eric A. Storch, +1 more
0citations -
Improving shared decision-making about cancer treatment through design-based data-driven decision-support tools and redesigning care paths: an overview of the 4D PICTURE project2024 Palliative Care and Social Practice article Health Professions Patient-Provider Communication in Healthcare Open access
Judith A C Rietjens, Ingeborg P. M. Griffioen, Jorge Sierra-Pérez, Gaby Sroczynski, Uwe Siebert, Alena Buyx, +60 more
19citations -
Transforming Knowledge into Practice: Science, Technology and Innovation in Support of the UN SDGs2024 Research Ideas and Outcomes article Computer Science Research Data Management Practices Open access
Christos Arvanitidis, Boris Barov, Alberto Basset, Klaas Deneudt, Montserrat Gonzalez-Ferreiro, Federico Drago, +9 more
1citations