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Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?2020 The American Journal of Human Genetics article Medicine Ethics in Clinical Research Open access
Anna Middleton, Richard Milne, Mohamed A. Almarri, Shamim Anwer, Jerome Atutornu, Elena E. Baranova, +41 more
154citations -
Guidebook: Hard-to-Share Data in the Social Sciences and Humanities2026 KNAW Research Portal (The Royal Netherlands Academy of Arts and Sciences) other Computer Science Research Data Management Practices Open access
Deborah Ellen Thorpe, Michelle van den Berk, Pascal Flohr, Marjan Grootveld, Ahmad Hesam, Lucas van der Meer, +1 more
0citations -
Personal Genomes in Practice: Exploring Citizen and Healthcare Professionals’ Perspectives on Personalized Genomic Medicine and Personal Health Data Spaces Using a Mixed-Methods Design
Judith Tommel, Daan Kenis, Nathalie Lambrechts, Richard M. Brohet, Jordy Swysen, Lotte Mollen, +7 more
11citations -
From roadmap to a sustainable end-to-end individualized therapy pathway2025 Therapeutic Advances in Rare Disease article Medicine Biomedical Ethics and Regulation Open access
Anneliene Hechtelt Jonker, Elena-Alexandra Tãtaru, David Dimmock, Alison Bateman-House, Holm Graeßner, Gareth S Baynam, +11 more
8citations