Papers matching “clinical data interoperability” 50
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CDE-Mapper: Using retrieval-augmented language models for linking clinical data elements to controlled vocabularies2025 Computers in Biology and Medicine article Biochemistry, Genetics and Molecular Biology Biomedical Text Mining and Ontologies Open access
Komal Gilani, Marlo Verket, Michel J. Dumontier, Hans‐Peter Brunner‐La Rocca, Visara Urovi
4citations -
A framework for sharing of clinical and genetic data for precision medicine applications2024 Nature Medicine article Computer Science Blockchain Technology Applications and Security Open access
Ulugbek K. Baymuradov, Ernest Fraenkel, Lyle W. Ostrow, Andrea Malaspina, Pietro Fratta, Jennifer E. Phillips‐Cremins
37citations -
The GA4GH Phenopacket schema defines a computable representation of clinical data2022 Nature Biotechnology article Biochemistry, Genetics and Molecular Biology Biomedical Text Mining and Ontologies Open access cited by 2 patents
Julius O.B. Jacobsen, Michael Baudis, Gareth S Baynam, J. Beckmann, Sergi Beltrán, Orion J. Buske, +60 more
117citations -
Real-world bleeding rates on emicizumab: the value of using nationwide digital treatment diary data in clinical research2025 Research and Practice in Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Martijn R Brands, Elisabeth M. Taal, Martijn A. H. Oude Voshaar, Mariette H E Driessens, Caroline M E van Veen, Marieke J. H. A. Kruip, +9 more
8citations -
Construction of personal health knowledge graphs for clinical data harmonization in breast cancer2026 npj Breast Cancer article Biochemistry, Genetics and Molecular Biology Biomedical Text Mining and Ontologies Open access
Wenjie Liang, Rutger van Mierlo, Anne-Lore BYNENS, Remzi Çelebi, Ensar Erol, Ömer Durukan Kılıç, +40 more
0citations -
The Architecture of a Feasibility Query Portal for Distributed COVID-19 Fast Healthcare Interoperability Resources (FHIR) Patient Data Repositories: Design and Implementation Study2022 JMIR Medical Informatics article Health Professions Electronic Health Records Systems Open access
Julian Gruendner, Noemi Deppenwiese, Michael Folz, Thomas Köhler, Björn Kroll, Hans‐Ulrich Prokosch, +8 more
48citations -
De-novo FAIRification via an Electronic Data Capture system by automated transformation of filled electronic Case Report Forms into machine-readable data2021 Journal of Biomedical Informatics article Computer Science Research Data Management Practices Open access
Martijn G. Kersloot, Annika Jacobsen, Karlijn H.J. Groenen, Bruna dos Santos Vieira, Rajaram Kaliyaperumal, Ameen Abu–Hanna, +5 more
28citations -
The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes2020 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access
Salma Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L T van den Akker, +10 more
52citations -
How Patient Organizations Can Drive FAIR Data Efforts to Facilitate Research and Health Care: A Report of the Virtual Second International Meeting on Duchenne Data Sharing, March 3, 20212021 Journal of Neuromuscular Diseases article Computer Science Research Data Management Practices Open access
Nawel Lalout, Γεώργιος Παλιούρας, Elizabeth Vroom, Peter A.C. ’t Hoen, Marco Roos
20citations -
Rare Diseases in Hospital Information Systems—An Interoperable Methodology for Distributed Data Quality Assessments2023 Methods of Information in Medicine article Health Professions Electronic Health Records Systems Open access
Kais Tahar, Yongli Mou, Raphael Verbuecheln, Holm Graeßner, Dagmar Krefting
13citations -
European cancer data sharing: Analyses of an international survey2026 International Journal of Medical Informatics article Computer Science Research Data Management Practices Open access
Larson Hogstrom, Arvydas Laurinavičius, Miguel Giraldez-Álvarez, Sigve Nakken, Ingrid Jenny Guldvik, Carlos Míguez Sánchez, +7 more
0citations -
Towards an ecosystem of clinical decision support tools for precision cancer medicine2026 npj Precision Oncology article Medicine Artificial Intelligence in Healthcare and Education Open access
Sigve Nakken, Anders Edsjö, Janne Lehtiö, Vigdis Nygaard, Paul Roepman, Richard Rosenquist, +62 more
0citations -
Repurposing Registries: Completeness of Real‐World Data for Regulatory and HTA Purposes in Three Cancer‐Focused Registries2026 Clinical Pharmacology & Therapeutics article Health Professions Electronic Health Records Systems Open access
Manon C. Wilpshaar, Doranne L. Hilarius, Luísa Prada, Ansgar Weltermann, Christine Leopold
1citations -
CMEO: a metadata-centric ontology for clinical studies exploration and harmonization assessment2025 BMC Medical Informatics and Decision Making article Biochemistry, Genetics and Molecular Biology Biomedical Text Mining and Ontologies Open access
Komal Gilani, Marlo Verket, Hans‐Peter Brunner‐La Rocca, Enrico Nicolis, Katharina Marx-Schütt, Visara Urovi, +1 more
1citations -
Data Resource Profile Update: The Dutch National Intensive Care Evaluation (NICE) registry2026 International Journal of Epidemiology article Medicine Sepsis Diagnosis and Treatment Open access
Ferishta Bakhshi‐Raiez, Marie-José Roos-Blom, Dave Anton Dongelmans, Mark van den Boogaard, Bas C. T. van Bussel, Dylan W. de Lange, +12 more
0citations -
The challenges of research data management in cardiovascular science: a DGK and DZHK position paper—executive summary2023 Clinical Research in Cardiology article Computer Science Research Data Management Practices Open access
Sabine Steffens, Katrin Schröder, Martina Krüger, Christoph Maack, Katrin Streckfuß‐Bömeke, Johannes Backs, +19 more
9citations -
Toward the Use of Real‐World Data for Regulatory and HTA Decision‐Making: Experiences and Recommendations from Six EU ‐Funded Projects2026 Clinical Pharmacology & Therapeutics article Economics, Econometrics and Finance Pharmaceutical Economics and Policy Open access
Martin Russek, Jonas Peltner, Kerstin Pfeifer, Theodoros N. Arvanitis, Dirk DE VALCK, Sieta T. de Vries, +29 more
0citations -
Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries2022 Orphanet Journal of Rare Diseases article Computer Science Research Data Management Practices Open access
Bruna dos Santos Vieira, César H. Bernabé, Shuxin Zhang, Haitham Abaza, Nirupama Benis, Alberto Cámara, +9 more
41citations -
Applying the FAIR principles to data in a hospital: challenges and opportunities in a pandemic2022 Journal of Biomedical Semantics article Computer Science Research Data Management Practices Open access
Núria Queralt-Rosiñach, Rajaram Kaliyaperumal, César H. Bernabé, Qinqin Long, Simone A. Joosten, Erik L.A. Flikkenschild, +3 more
67citations -
Implementation of eHealth and AI integrated diagnostics with multidisciplinary digitized data: are we ready from an international perspective?2020 European Radiology article Medicine Artificial Intelligence in Healthcare and Education Open access
Mark Bukowski, Róbert Farkas, Oya Beyan, Lorna Moll, Horst Karl Hahn, Fabian M. Kiessling, +1 more
70citations