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Additional file 1 of Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries2023 University of Groningen research database (University of Groningen / Centre for Information Technology) dataset Computer Science Research Data Management Practices Open access
Bruna dos Santos Vieira, César H. Bernabé, Shuxin Zhang, Haitham Abaza, Nirupama Benis, Alberto Cámara, +9 more
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Additional file 2 of Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries2023 University of Groningen research database (University of Groningen / Centre for Information Technology) dataset Computer Science Research Data Management Practices Open access
Bruna dos Santos Vieira, César H. Bernabé, Shuxin Zhang, Haitham Abaza, Nirupama Benis, Alberto Cámara, +9 more
0citations -
Data and code for 'FAIR with FHIR: A Proposed Workflow for Retrospective FAIRification of FHIR-Compliant Health Data'2026 Zenodo (CERN European Organization for Nuclear Research) dataset Computer Science Research Data Management Practices Open access
Femke Heddema, César H. Bernabé, Ihure Chris, D. Kapitan, Marco Roos
0citations
4 results