Data and code for 'FAIR with FHIR: A Proposed Workflow for Retrospective FAIRification of FHIR-Compliant Health Data'

Zenodo (CERN European Organization for Nuclear Research)

Abstract

This record contains the data and code accompanying the paper "FAIR with FHIR: A Proposed Workflow for Retrospective FAIRification of FHIR-Compliant Health Data". This record is organized as follows: -- "(Ontologised) Anonymised Data": this file contains access instructions to the anonymised DuckDB data, and the Docker/Ontop configuration files for accessing the contents of a dump from DuckDB transformed into RDF (augmented with domain relevant ontologies). -- "dataaccess.md": contains relevant information about the PharmAccess Data Access Committee. -- "FAIRwithFHIR_MomCare_metadata.png" and "metadata.ttl": depict the PharmAccess anonymised patient registry metadata model and its instantiated implementation, respectively. -- "IPSplus_FHIR_profile_specification.pdf": describes the IPS+ FHIR profile used as the foundational data model of the MomCare dataset. -- "FAIRwithFHIR_implementation_guide.pdf": provides the action-by-action description of the FAIR implementation, with worked examples. -- "README.md": overview of the repository and usage notes.

Authors 4

1. Heddema Femke

   PharmAccess Group

   Affiliation as printed

   PharmAccess Foundation

2. César H. Bernabé Aachen

   University of Illinois Urbana-Champaign · Leiden University Medical Center

   Affiliation as printed

   Leiden University Medical Center

   University of Illinois Urbana-Champaign

3. Ihure Chris
   Affiliation as printed

   PharmAccess Kenya

4. Marco Roos Aachen

   Leiden University Medical Center

   Affiliation as printed

   Leiden University Medical Center