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Facilitating direct patient access to safety information about their breast implant: A Patient Access Tool sourced by the Dutch Breast Implant Registry2023 Journal of Plastic Reconstructive & Aesthetic Surgery article Medicine Breast Implant and Reconstruction Open access
J. Xavier Harmeling, T.A. Bruins, Babette E. Becherer, Marije J Hoornweg, M. Harmsen, Marc A.M. Mureau, +1 more
0citations -
Online recorded patient reported outcome measures in the Severe Heterogeneous Asthma Research Collaboration Patient-centered (SHARP) registry could provide information for early assessment of response to biologics in patients with severe asthma
Valentyna Yasinska, Oksana Tenselius, Dominique Hamerlijnck, Aruna T. Bansal, Kristina Biekšienė, Diogo Miguel Monteiro Canhoto, +10 more
0citations -
The Dutch Dystrophinopathy Database: A National Registry with Standardized Patient and Clinician Reported Real-World Data2024 Journal of Neuromuscular Diseases article Biochemistry, Genetics and Molecular Biology Muscle Physiology and Disorders Open access
Nienke M. van de Velde, Yvonne D. Krom, J. Bongers, Rianne J A Hoek, N.A. Ikelaar, Menno van der Holst, +11 more
7citations -
The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience2025 Journal of Neuromuscular Diseases article Computer Science Research Data Management Practices Open access
Nawel Lalout, Mark D. Wilkinson, Dagmar Wandrei, Adrian Tassoni, António Atalaia, Alberto Cámara Ballesteros, +11 more
1citations -
National trends in patient characteristics, interventional techniques and outcomes of endovascular treatment for acute ischaemic stroke: Final results of the MR CLEAN Registry (2014–2018)
Wouter H. Hinsenveld, Josje Brouwer, Sanne J. den Hartog, Agnetha A.E. Bruggeman, Manon Kappelhof, Ivo G.H. Jansen, +70 more
9citations -
Effectiveness of a multifaceted quality improvement intervention to improve patient outcomes after total hip and knee arthroplasty: a registry nested cluster randomised controlled trial
Peter van Schie, Leti van Bodegom‐Vos, Tristan M Zijdeman, Rob G. H. H. Nelissen, Perla J. Marang‐van de Mheen
15citations -
Superiority of the Dutch Breast Implant Registry over electronic patient records in tracing breast implants: results of a test recall2026 Plastic & Reconstructive Surgery article Medicine Breast Implant and Reconstruction Open access
Puck E Melse, Louisa S. Smid, J. Juliët Vrolijk, T.A. Bruins, Xavier H.A. Keuter, Marc A.M. Mureau, +1 more
0citations -
Tenosynovial Giant Cell Tumor Observational Platform Project (TOPP) Registry: A 2-Year Analysis of Patient-Reported Outcomes and Treatment Strategies2023 The Oncologist article Medicine Musculoskeletal synovial abnormalities and treatments Open access
Emanuela Palmerini, John H. Healey, Nicholas Matthew Bernthal, Sebastian Bauer, Hendrik W. B. Schreuder, Andreas Leithner, +9 more
12citations -
Prosthesis-Patient Mismatch After Aortic Valve Replacement in the PARTNER 2 Trial and Registry2021 JACC: Cardiovascular Interventions article Medicine Cardiac Valve Diseases and Treatments Open access
Julien Ternacle, Philippe Pîbarot, Howard C. Herrmann, Susheel Kodali, Jonathon A Leipsic, Philipp Blanke, +20 more
109citations -
Angiographic and clinical outcome of SARS-CoV-2 positive patients with ST-segment elevation myocardial infarction undergoing primary angioplasty: A collaborative, individual patient data meta-analysis of six registry-based studies2022 European Journal of Internal Medicine review Medicine Acute Myocardial Infarction Research Open access
Giuseppe De Luca, Angelo Silverio, Monica Verdoia, Zbigniew Siudak, Tomasz Tokarek, Thomas A Kite, +9 more
31citations -
#3242 Long-term outcomes in IgA nephropathy: findings from the ERKNet patient registry (ERKReg)2025 Nephrology Dialysis Transplantation article Medicine Renal Diseases and Glomerulopathies Open access
Eyal Rahmani, Licia Peruzzi, Jürgen Floege, Dario Roccatello, Enrique Morales Ruiz, Olivia Boyer, +6 more
0citations -
Trans-lesional fractional flow reserve gradient as derived from coronary CT improves patient management: ADVANCE registry2021 Journal of cardiovascular computed tomography article Medicine Cardiac Imaging and Diagnostics Open access
Hidenobu Takagi, Jonathon A Leipsic, Noah McNamara, Isabella Martin, Timothy A. Fairbairn, Takashi Akasaka, +22 more
54citations