FAIR4PGHD: A framework for FAIR implementation over PGHD

Fair Connect, vol. 1, pp. 35–40

Abstract

Patient Generated Health Data (PGHD) are being considered for integration with health facilities, however little is known about how such data can be made machine-actionable in a way that meets FAIR guidelines. This article proposes a 5-stage framework that can be used to achieve this.

Authors 4

1. Abdullahi Abubakar Kawu corresponding

   Technological University Dublin

   Affiliation as printed

   Technological University, Dublin, Ireland

2. Dympna M. O’Sullivan

   Technological University Dublin

   Affiliation as printed

   Technological University, Dublin, Ireland

3. Lucy Hederman

   Trinity College Dublin

   Affiliation as printed

   Trinity College, Dublin, Ireland

4. Mirjam van Reisen Aachen

   Leiden University · Tilburg University · Leiden University Medical Center

   Affiliation as printed

   Leiden University Medical Centre & Tilburg University School of Humanities and Digital Sciences, Netherlands