From Raw Data to FAIR Data: The FAIRification Workflow for Health Research

• From registration to insight: how STRONG AYA transforms registry data to enhance decision-support tools for adolescent and young adult oncology

  2026 ESMO Real World Data and Digital Oncology article Medicine Childhood Cancer Survivors' Quality of Life Open access

  0

  citations
• A study on interoperability between two Personal Health Train infrastructures in leukodystrophy data analysis

  2024 Scientific Data data-paper Health Professions Electronic Health Records Systems Open access

  12

  citations
• What prevents us from reusing medical real-world data in research

  2023 Scientific Data data-paper Health Professions Electronic Health Records Systems Open access

  40

  citations
• FAIR4PGHD: A framework for FAIR implementation over PGHD

  2023 Fair Connect article Health Professions Electronic Health Records Systems Open access

  2

  citations
• Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries

  2022 Orphanet Journal of Rare Diseases article Computer Science Research Data Management Practices Open access

  41

  citations
• Reply to Letter

  2022 Obesity Surgery letter Medicine Bariatric Surgery and Outcomes

  0

  citations
• Differences Between the 2016 and 2022 Editions of the Enhanced Recovery After Bariatric Surgery (ERABS) Guidelines: Call to Action of FAIR Data and the Creation of a Global Consortium of Bariatric Care and Research

  2022 Obesity Surgery article Medicine Enhanced Recovery After Surgery Open access

  12

  citations
• Towards FAIRification of Sensitive and Fragmented Rare Disease Patient Data: Challenges and Solutions in European Reference Network Registries

  2022 Research Square preprint Computer Science Research Data Management Practices Open access

  7

  citations
• Multi-Institutional Breast Cancer Detection Using a Secure On-Boarding Service for Distributed Analytics

  2022 Applied Sciences article Computer Science Privacy-Preserving Technologies in Data Open access

  12

  citations
• Expanding Non-Patient COVID-19 Data: Towards the FAIRification of Migrants’ Data in Tunisia, Libya and Niger

  2022 Data Intelligence article Computer Science Research Data Management Practices Open access

  5

  citations
• FAIR Machine Learning Model Pipeline Implementation of COVID-19 Data

  2022 Data Intelligence article Computer Science Research Data Management Practices Open access

  10

  citations
• The de novo FAIRification process of a registry for vascular anomalies

  2021 Orphanet Journal of Rare Diseases article Computer Science Research Data Management Practices Open access

  27

  citations
• De-novo FAIRification via an Electronic Data Capture system by automated transformation of filled electronic Case Report Forms into machine-readable data

  2021 Journal of Biomedical Informatics article Computer Science Research Data Management Practices Open access

  28

  citations
• De-novo FAIRification via an Electronic Data Capture system by automated transformation of filled electronic Case Report Forms into machine-readable data

  2021 medRxiv preprint Computer Science Research Data Management Practices Open access

  8

  citations

14 results