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2718P Characterising treatment and overall survival of chondrosarcoma patients across Europe using real-world data (RWD): Data analysis and real-world interrogation network (DARWIN EU) cohort study
Peter Prinsen, Jelle Evers, Vincent K.Y. Ho, Meike van de Sande, Kimmo Porkka, Anna Hammais, +9 more
0citations -
2022-RA-1085-ESGO Using data-driven algorithms and real-world data for updating endometrial clinical practice guidelines2022 International Journal of Gynecological Cancer article Medicine Clinical practice guidelines implementation Open access
Olga L. van der Hel, Kees C.W.J. Ebben, Thijs van Vegchel, Arturo Moncada Torres, Jurrian van der Werf, Maaike A. van der Aa, +1 more
0citations -
Enhancing rare disease guideline development with real-world data: a method evaluation2026 BMC Medical Research Methodology article Medicine Clinical practice guidelines implementation Open access
Willemijn F. E. Irvine, Linde Margriet van der Kamp, Olivia K.C. Spivack, Alexandra Benachi, Carmen Mesas Burgos, Roel Bakx, +2 more
3citations -
RC10.3 - ECE_2577 - Real-world data for effectiveness and safety of palopegteriparatide in patients with chronic hypoparathyroidism. The PaTH REAL study2026 European Journal of Endocrinology conference-abstract Medicine Parathyroid Disorders and Treatments Open access
Maria Yavropoulou, Symeon Tournis, Maria-Eleni Chondrogianni, Dimos Florakis, Alexandra Chrisoulidou, Foteini Adamidou, +13 more
0citations -
Leveraging real-world data for continuous evaluation of computational clinical practice guidelines2025 BMJ Health & Care Informatics article Medicine Clinical practice guidelines implementation Open access
Kees C.W.J. Ebben, Cor Doede de Kroon, Channa E. Schmeink, Olga L. van der Hel, Thijs van Vegchel, Ignace H J T de Hingh, +1 more
0citations -
The Dutch Dystrophinopathy Database: A National Registry with Standardized Patient and Clinician Reported Real-World Data2024 Journal of Neuromuscular Diseases article Biochemistry, Genetics and Molecular Biology Muscle Physiology and Disorders Open access
Nienke M. van de Velde, Yvonne D. Krom, J. Bongers, Rianne J A Hoek, N.A. Ikelaar, Menno van der Holst, +11 more
7citations -
Integrating Real-World Data and Computational Guidelines: Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology2025 Studies in health technology and informatics book-chapter Health Professions Electronic Health Records Systems Open access
Robin Pasman, F. Jacobs, Rik Eshuis, Cor Doede de Kroon, Matthijs Sloep, Jurrian van der Werf, +1 more
0citations -
Celebrating the registration of 9.000 patients treated with CAR T cells in the EBMT registry: Collection of real-world data in the context of hematopoietic cellular therapies2024 Best Practice & Research Clinical Haematology article Medicine CAR-T cell therapy research Open access
Christian Chabannon, Annalisa Ruggeri, Silvia Montoto, Anja van Biezen, Steffie Maria van der Werf, Annemiek Markslag, +9 more
12citations -
Individual patient data to allow a more elaborated comparison of trial results with real-world outcomes from second-line immunotherapy in NSCLC2023 BMC Medical Research Methodology article Medicine Cancer Immunotherapy and Biomarkers Open access
Rawa Kamaran Ismail, Franz M.N.H. Schramel, Maaike van Dartel, Anna M.G. Pasmooij, Christine M. Cramer‐van der Welle, Doranne L. Hilarius, +3 more
9citations -
Abstract PS10-07: Pathologic complete response and 3-year survival with or without pertuzumab using real-world data of stage II and III HER2-positive breast cancer
Anna van der Voort, Marte C. Liefaard, Mette van Ramshorst, Erik D. van Werkhoven, Astrid N. Scholten, Jelle Wesseling, +3 more
0citations -
Real-world and natural history data for drug evaluation in Duchenne muscular dystrophy: suitability of the North Star Ambulatory Assessment for comparisons with external controls
Francesco Muntoni A, James Signorovitch, Gautam Sajeev, Nathalie Goemans, Brenda L. Y. Wong, Cuixia Tian, +12 more
40citations -
Automated gathering of real-world data from online patient forums can complement pharmacovigilance for rare cancers2022 Scientific Reports article Pharmacology, Toxicology and Pharmaceutics Pharmacovigilance and Adverse Drug Reactions Open access cited by 1 patent
Anne R. Dirkson, Suzan Verberne, Wessel Kraaij, G. van Oortmerssen, Hans A. J. Gelderblom
10citations -
Model-Based Dosing of Anti-Thymocyte Globulin in Pediatric Allogeneic Hematopoietic Cell Transplantation Improves Survival Chances: Updated Results from the Single Arm Phase II Parachute-Trial Combined with Real-World Data2024 Transplantation and Cellular Therapy article Medicine Hematopoietic Stem Cell Transplantation Open access
Rick Admiraal, Stefan Nierkens, Marc Bierings, Mirjam E. Belderbos, Alwin D. R. Huitema, Robbert G. M. Bredius, +13 more
2citations -
Web-Based System to Capture Consistent and Complete Real-world Data of Physical Therapy Interventions Following Total Knee Replacement: Design and Evaluation Study2022 JMIR Rehabilitation and Assistive Technologies article Health Professions Electronic Health Records Systems Open access
Patricia D. Franklin, Carol A. Oatis, Hua Zheng, Marie Deanna Westby, Wilfred F. Peter, Jeremie Laraque-Two Elk, +2 more
2citations -
Cemiplimab in locally advanced or metastatic cutaneous squamous cell carcinoma: prospective real-world data from the DRUG Access Protocol2024 The Lancet Regional Health - Europe article Medicine Nonmelanoma Skin Cancer Studies Open access
Karlijn Verkerk, Birgit S. Geurts, Laurien Joanna Zeverijn, Vincent van der Noort, Henk M.W. Verheul, John B.A.G. Haanen, +11 more
30citations -
Real-world evidence in achondroplasia: considerations for a standardized data set2023 Orphanet Journal of Rare Diseases article Biochemistry, Genetics and Molecular Biology Connective tissue disorders research Open access
Yasemin Alanay, Klaus L. Mohnike, Ola Nilsson, Inês Alves, Moeenaldeen Dia Alsayed, Natasha M. Appelman‐Dijkstra, +19 more
8citations