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Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?2020 The American Journal of Human Genetics article Medicine Ethics in Clinical Research Open access
Anna Middleton, Richard Milne, Mohamed A. Almarri, Shamim Anwer, Jerome Atutornu, Elena E. Baranova, +41 more
154citations -
How Patient Organizations Can Drive FAIR Data Efforts to Facilitate Research and Health Care: A Report of the Virtual Second International Meeting on Duchenne Data Sharing, March 3, 20212021 Journal of Neuromuscular Diseases article Computer Science Research Data Management Practices Open access
Nawel Lalout, Γεώργιος Παλιούρας, Elizabeth Vroom, Peter A.C. ’t Hoen, Marco Roos
20citations -
The Data Sharing Paradox of Synthetic Data in Healthcare2025 Studies in health technology and informatics book-chapter Computer Science Privacy-Preserving Technologies in Data Open access
Jim L. Achterberg, Saif ul Islam, Hafiz Muhammad Waseem, Parisis Gallos, Gregory Epiphaniou, Carsten R. Maple, +2 more
0citations -
Distributed Privacy-Preserving Data Analysis in NFDI4Health With the Personal Health Train2023 Proceedings of the Conference on Research Data Infrastructure conference-paper Computer Science Privacy-Preserving Technologies in Data Open access
Yongli Mou, Li Fei-Fei, Sven Weber, Sabith Haneef, Hans Meine, Liliana Caldeira, +7 more
2citations -
A Privacy-Preserving Distributed Analytics Platform for Health Care Data2022 Methods of Information in Medicine article Computer Science Privacy-Preserving Technologies in Data Open access
Sascha Welten, Yongli Mou, Laurenz Neumann, Mehrshad Jaberansary, Yeliz Yediel Ucer, Toralf Kirsten, +2 more
41citations -
Personal Genomes in Practice: Exploring Citizen and Healthcare Professionals’ Perspectives on Personalized Genomic Medicine and Personal Health Data Spaces Using a Mixed-Methods Design
Judith Tommel, Daan Kenis, Nathalie Lambrechts, Richard M. Brohet, Jordy Swysen, Lotte Mollen, +7 more
11citations -
European cancer data sharing: Analyses of an international survey2026 International Journal of Medical Informatics article Computer Science Research Data Management Practices Open access
Larson Hogstrom, Arvydas Laurinavicius, Miguel Giraldez Alvarez, Sigve Nakken, Ingrid Jenny Guldvik, Carlos Míguez Sánchez, +7 more
0citations -
Breaking medical data sharing boundaries by using synthesized radiographs2020 Science Advances article Medicine Artificial Intelligence in Healthcare and Education Open access
Tianyu Han, Sven Nebelung, Christoph Haarburger, Nicolas Horst, Sebastian Daniel Reinartz, Dorit Merhof, +3 more
67citations -
A framework for sharing of clinical and genetic data for precision medicine applications2024 Nature Medicine article Computer Science Blockchain Technology Applications and Security Open access
Ulugbek K. Baymuradov, Ernest Fraenkel, Lyle W. Ostrow, Andrea Malaspina, Pietro Fratta, Jennifer E. Phillips‐Cremins
37citations