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The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes2020 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access
Salma Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L T van den Akker, +10 more
52citations -
Governance characteristics in building collaborative networks: lessons from a local initiative to reduce health inequalities2025 Discover Health Systems article Social Sciences Public Policy and Administration Research Open access
Roos van Lammeren, Suzan van der Pas, Jelmer Schalk, Jet Bussemaker
2citations -
Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?2020 The American Journal of Human Genetics article Medicine Ethics in Clinical Research Open access
Anna Middleton, Richard Milne, Mohamed A. Almarri, Shamim Anwer, Jerome Atutornu, Elena E. Baranova, +41 more
154citations -
Implementation of eHealth and AI integrated diagnostics with multidisciplinary digitized data: are we ready from an international perspective?2020 European Radiology article Medicine Artificial Intelligence in Healthcare and Education Open access
Mark Bukowski, Róbert Farkas, Oya Beyan, Lorna Moll, Horst Karl Hahn, Fabian M. Kiessling, +1 more
70citations -
Toward the Use of Real‐World Data for Regulatory and HTA Decision‐Making: Experiences and Recommendations from Six EU ‐Funded Projects2026 Clinical Pharmacology & Therapeutics article Economics, Econometrics and Finance Pharmaceutical Economics and Policy Open access
Martin Russek, Jonas Peltner, Kerstin Pfeifer, Theodoros N. Arvanitis, Dirk DE VALCK, Sieta T. de Vries, +29 more
0citations -
Assessment of Clinical Information Quality in Digital Health Technologies: International eDelphi Study2022 Journal of Medical Internet Research article Health Professions Electronic Health Records Systems Open access
Kayode Philip Fadahunsi, Petra A. Wark, Nikolaos Mastellos, Ana Luísa Neves, J. Gallagher, Azeem Majeed, +23 more
13citations