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Papers matching “data sharing ethics” 100

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Data Sharing Under the General Data Protection Regulation
2021 Hypertension article Medicine Ethics in Clinical Research Open access

Antonia Vlahou, Dara Hallinan, Rolf Apweiler, Àngel Argilés, Joachim Beige, Ariela Benigni, +33 more

139

citations
Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
2021 Genome Medicine article Medicine Ethics in Clinical Research Open access

Richard Milne, Katherine I. Morley, Mohamed A. Almarri, Shamim Anwer, Jerome Atutornu, Elena E. Baranova, +42 more

82

citations
Balancing ethical considerations and Open Science principles when sharing community relevant data
2025 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access

0

citations
Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
2020 The American Journal of Human Genetics article Medicine Ethics in Clinical Research Open access

Anna Middleton, Richard Milne, Mohamed A. Almarri, Shamim Anwer, Jerome Atutornu, Elena E. Baranova, +41 more

154

citations
Ethics and Data Aggregation
2026 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access

Louise M. Bezuidenhout

0

citations
Ethical and legal challenges of cross-border health data sharing in Europe: A normative policy analysis of ICUData4EU
2026 Health Policy article Social Sciences Digitalization, Law, and Regulation

Jinshuo Liu, Marleen M. Eijkholt, Yonghui Ma

0

citations
Whole genome sequencing in (recurrent) glioblastoma: challenges related to informed consent procedures and data sharing
2024 Acta Neurochirurgica article Medicine Ethics in Clinical Research Open access

Mira C. Hasner, Mark P. van Opijnen, Filip De Vos, Edwin P. J. G. Cuppen

3

citations
Guidebook: Sharing field notes
2026 Leiden Repository (Leiden University) article Social Sciences Data Analysis and Archiving Open access

Pascal Flohr, Anna M. Roodhof, Michelle van den Berk, Hannah DeLacey

0

citations
D3.2.1.1 Process for contributing and accessing FAIR data defined and executed with industry partners
2025 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access

0

citations
D3.2.1.1 Process for contributing and accessing FAIR data defined and executed with industry partners
2025 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access

0

citations
Unveiling the risks: protecting privacy in single-cell genomics data
2025 Nephrology Dialysis Transplantation article Computer Science Privacy-Preserving Technologies in Data Open access

Rafael Kramann, Christoph Kuppe, Valérie A. Luyckx, Wim Van Biesen, Stefanie Steiger

2

citations
Making forest data fair and open
2022 Nature Ecology & Evolution article Computer Science Research Data Management Practices Open access

Renato A. Ferreira de Lima, Oliver Lawrence Phillips, Álvaro Duque, J. Sebastián Tello, Stuart James Davies, Alexandre Adalardo de Oliveira, +19 more

45

citations
Knowledge-Driven Data Ecosystems Toward Data Transparency
2021 Journal of Data and Information Quality article Decision Sciences Data Quality and Management Open access

Sandra Geisler, María-Esther Vidal, Cinzia Cappiello, Bernadette Farias Lóscio, Avigdor Gal, Matthias Jarke, +6 more

68

citations
Enabling ad-hoc reuse of private data repositories through schema extraction
2020 Journal of Biomedical Semantics article Computer Science Semantic Web and Ontologies Open access

Lars Gleim, Md. Rezaul Karim, Lukas Zimmermann, Oliver Kohlbacher, Holger Stenzhorn, Stefan Decker, +1 more

2

citations
The Role of Share Repurchases for Firms’ Social and Environmental Sustainability
2022 Journal of Business Ethics article Business, Management and Accounting Corporate Social Responsibility Reporting Open access

Mario Vaupel, David Bendig, Denise Fischer, Malte Brettel

60

citations
Rotterdam Oncology Documentation (RONCDOC) – a high-quality data warehouse and tissue collection for head and neck cancer
2025 BMC Cancer article Medicine Head and Neck Cancer Studies Open access

Arta Hoesseini, Emilie A. C. Dronkers, Maria J. De Herdt, Marjan H. Wieringa, Marie‐Louise F. van Velthuysen, Marinella P. J. Offerman, +5 more

3

citations
An ethics for linguistics? What, why, and how?
2025 Linguistics article Social Sciences Academic integrity and plagiarism Open access

Marina Terkourafi

3

citations
Personal Genomes in Practice: Exploring Citizen and Healthcare Professionals’ Perspectives on Personalized Genomic Medicine and Personal Health Data Spaces Using a Mixed-Methods Design
2023 Genes article Health Professions Electronic Health Records Systems Open access

Judith Tommel, Daan Kenis, Nathalie Lambrechts, Richard M. Brohet, Jordy Swysen, Lotte Mollen, +7 more

11

citations
Learning healthcare systems in cardiology: A qualitative interview study on ethical dilemmas of a learning healthcare system
2023 Learning Health Systems article Medicine Ethics in Clinical Research Open access

Sara J. M. Laurijssen, Rieke van der Graaf, Ewoud Schuit, Melina den Haan, Wouter van Dijk, Rolf H. H. Groenwold, +3 more

3

citations
From roadmap to a sustainable end-to-end individualized therapy pathway
2025 Therapeutic Advances in Rare Disease article Medicine Biomedical Ethics and Regulation Open access

Anneliene Hechtelt Jonker, Elena-Alexandra Tãtaru, David Dimmock, Alison Bateman-House, Holm Graeßner, Gareth S Baynam, +11 more

8

citations
Human Biology Research in Anthropological Review: 2025 Onwards Editorial and Polish Anthropological Society Perspectives
2025 Anthropological Review article Arts and Humanities Publishing and Scholarly Communication Open access

Justyna Jolanta Miszkiewicz, Jacek Tomczyk, Francesco Maria Galassi, M Durda, Barbara Mnich, Joanna Nieczuja-Dwojacka, +1 more

0

citations
Data Resource Profile: Extramural Leiden University Medical Center Academic Network (ELAN)
2024 International Journal of Epidemiology article Health Professions Medical Coding and Health Information Open access

Janet M Kist, Hedwig M. M. Vos, Rimke Cathelijne Vos, Albert T.A. Mairuhu, Jeroen Nathan Struijs, Robert R. J. M. Vermeiren, +10 more

25

citations
Computational social science: Obstacles and opportunities
2020 Science article Decision Sciences Scientific Computing and Data Management Open access cited by 1 patent

David M. J. Lazer, Alex Pentland, Duncan J. Watts, Sinan Aral, Susan Carleton Athey, Noshir Contractor, +9 more

460

citations
D1.4 Data Management Plan
2024 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access

Emanuela Tangari, Kari Mäki, European Dynamics (Greece), Sayawu Yakubu Diaba, Marjorie Hoegen, Aytug Yavuzer

0

citations
D1.4 Data Management Plan
2024 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access

Emanuela Tangari, Kari Mäki, European Dynamics (Greece), Sayawu Yakubu Diaba, Marjorie Hoegen, Aytug Yavuzer

0

citations