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Improved access to arachnological data for ecological research through the ARAMOB data repository, supported by Diversity Workbench and NFDI data pipelines2023 Arachnologische Mitteilungen Arachnology Letters article Computer Science Research Data Management Practices Open access
Alexander Daniel Bach, Martina Roß‐Nickoll, Joachim Holstein, Richard Ottermanns, Florian Raub, Dagmar Triebel, +2 more
1citations -
The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes2020 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access
Salma Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L T van den Akker, +10 more
52citations -
Arthroplasty registries at a glance: an initiative of the International Society of Arthroplasty Registries (ISAR) to facilitate access, understanding, and reporting of registry data from an international perspective
Anne Lübbeke, Lotje Anna Hoogervorst, Perla J Marang-van de Mheen, Heather A. Prentice, Ola Rolfson, Rob G. H. H. Nelissen, +6 more
16citations -
Chromatin-accessibility estimation from single-cell ATAC-seq data with scOpen2021 Nature Communications article Biochemistry, Genetics and Molecular Biology Single-cell and spatial transcriptomics Open access
Zhijian Li, Christoph Kuppe, Susanne Maria Ziegler, Mingbo Cheng, Nazanin Kabgani, Sylvia Menzel, +3 more
141citations -
Access to kidney transplantation and re-transplantation from childhood to adulthood: long-term data from the ERA Registry2025 Nephrology Dialysis Transplantation article Medicine Renal Transplantation Outcomes and Treatments Open access
Evgenia Preka, Marjolein Bonthuis, Stephen D. Marks, Anneke Kramer, Aiko P. J. de Vries, Søren Schwartz Sørensen, +18 more
1citations -
Cemiplimab in locally advanced or metastatic cutaneous squamous cell carcinoma: prospective real-world data from the DRUG Access Protocol2024 The Lancet Regional Health - Europe article Medicine Nonmelanoma Skin Cancer Studies Open access
Karlijn Verkerk, Birgit S. Geurts, Laurien Joanna Zeverijn, Vincent van der Noort, Henk M.W. Verheul, John B.A.G. Haanen, +11 more
30citations -
Nivolumab in pre-treated advanced non-small cell lung cancer: long term follow up data from the Dutch expanded access program and routine clinical care2020 Translational Lung Cancer Research article Medicine Cancer Immunotherapy and Biomarkers Open access
Robert D. Schouten, Lucie Egberink, Mirte Muller, Cornedine Jannette de Gooijer, Erik D. van Werkhoven, Michel M. van den Heuvel
11citations -
How Patient Organizations Can Drive FAIR Data Efforts to Facilitate Research and Health Care: A Report of the Virtual Second International Meeting on Duchenne Data Sharing, March 3, 20212021 Journal of Neuromuscular Diseases article Computer Science Research Data Management Practices Open access
Nawel Lalout, Γεώργιος Παλιούρας, Elizabeth Vroom, Peter A.C. ’t Hoen, Marco Roos
20citations -
Deliverable D1.3 - Data Management Plan2026 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access
Rita Clancy, María Martínez‐Ibáñez, Nicola Boaretto, Mattia Felice Palermo, Estibaliz Crespo, Elixabete Ayerbe, +9 more
0citations -
Deliverable D1.3 - Data Management Plan2026 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access
Rita Clancy, María Martínez‐Ibáñez, Nicola Boaretto, Mattia Felice Palermo, Estibaliz Crespo, Elixabete Ayerbe, +10 more
0citations