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Bleeding symptoms in persons with rare bleeding disorders and a heterozygous genotype: data from the Rare Bleeding Disorders in the Netherlands study2025 Journal of Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Marjon H. Cnossen, Nick van Es, Paul L. den Exter, Ilmar C. Kruis, Dominique P.M.S.M. Maas, Karina Meijer, +9 more
3citations -
Health-related quality of life in rare bleeding disorders: results from the Rare Bleeding Disorders in the Netherlands study2025 Research and Practice in Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Sterre P E Willems, Marjon H. Cnossen, Nick van Es, Paul L. den Exter, Ilmar C. Kruis, Karina Meijer, +5 more
1citations -
Targeted exome analysis in patients with rare bleeding disorders: data from the Rare Bleeding Disorders in the Netherlands study2024 Research and Practice in Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Sterre P E Willems, Annet Simons, Joline L. Saes, Marjan M. Weiss, Sanna R. Rijpma, Selene Schoormans, +10 more
11citations -
High prevalence of heavy menstrual bleeding in women with rare bleeding disorders in the Netherlands: retrospective data from the RBiN study2023 Journal of Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Dominique P.M.S.M. Maas, Joline L. Saes, Nicole M. A. Blijlevens, Marjon H. Cnossen, Paul L. den Exter, Olivier W.H. van der Heijden, +8 more
18citations -
Enhanced thrombin and plasmin generation profiles in alpha-2-antiplasmin–deficient patients: Data from the Rare Bleeding disorders in the Netherlands study2024 Research and Practice in Thrombosis and Haemostasis article Medicine Blood Coagulation and Thrombosis Mechanisms Open access
Bauke Haisma, Sanna R. Rijpma, Marjon H. Cnossen, Paul L. den Exter, Ilmar C. Kruis, Karina Meijer, +6 more
1citations -
Treatment of patients with rare bleeding disorders in the Netherlands: Real‐life data from the RBiN study2022 Journal of Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Dominique P.M.S.M. Maas, Joline L. Saes, Nicole M. A. Blijlevens, Marjon H. Cnossen, Paul L. den Exter, Ilmar C. Kruis, +6 more
22citations -
PB0203 Altered Bleeding Phenotype in Patients with Co-inheritance of Genetic Variants in Thrombosis and Hemostases Genes in Rare Bleeding Disorders2023 Research and Practice in Thrombosis and Haemostasis conference-abstract Medicine Blood properties and coagulation Open access
Sara M. Willems, A. Simons, Joline L. Saes, Marjon H. Cnossen, Ilmar C. Kruis, Karina Meijer, +6 more
0citations -
High prevalence of postpartum hemorrhage in women with rare bleeding disorders in the Netherlands: retrospective data from the RBiN study2023 Journal of Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Dominique P.M.S.M. Maas, Joline L. Saes, Nicole M. A. Blijlevens, Marjon H. Cnossen, Paul L. den Exter, Olivier W.H. van der Heijden, +17 more
12citations -
PB0205 High Prevalence of Heavy Menstrual Bleeding in Women with Rare Bleeding Disorders in the Netherlands: Retrospective Data from the RBiN Study2023 Research and Practice in Thrombosis and Haemostasis conference-abstract Medicine Hemophilia Treatment and Research Open access
Derek Maas, Joline L. Saes, Nicole M. A. Blijlevens, Marjon H. Cnossen, Ilmar C. Kruis, Karina Meijer, +5 more
1citations -
Endothelial colony-forming cells in the spotlight: insights into the pathophysiology of von Willebrand disease and rare bleeding disorders2024 Journal of Thrombosis and Haemostasis article Medicine Platelet Disorders and Treatments Open access
Sebastiaan N. J. Laan, Britte G Lenderink, Jeroen C.J. Eikenboom, Ruben Bierings
11citations -
Colorectal cancer screening in patients with inherited bleeding disorders: high cancer detection rate in hemophilia patients2023 Journal of Thrombosis and Haemostasis article Medicine Colorectal Cancer Screening and Detection Open access
Eva K Kempers, Calvin B. van Kwawegen, Joke de Meris, Manon C.W. Spaander, Saskia E.M. Schols, Paula F. Ypma, +10 more
3citations -
Psychometric properties and outcomes of the PROMIS Sexual Function and Satisfaction measures in individuals with congenital bleeding disorders2026 Research and Practice in Thrombosis and Haemostasis article Medicine Sexual function and dysfunction studies Open access
Tessa C. M. van Gastel, Lorynn Teela, Michiel A. J. Luijten, Vicky Lehmann, Marjolein Peters, Caroline Barbara Terwee, +11 more
0citations -
SYMPHONY consortium: Orchestrating personalized treatment for patients with bleeding disorders2022 Journal of Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Marjon H. Cnossen, Simone H. Reitsma, Roger E. G. Schutgens, Rolf T. Urbanus, Hester Floor Lingsma, Ron A. A. Mathôt, +54 more
28citations -
Higher-dosed clotting factor prophylaxis fails to reduce postpartum hemorrhage in women with von Willebrand disease: findings from the observational PRegnancy and Inherited bleeding DisordErS study2026 Journal of Thrombosis and Haemostasis article Medicine Platelet Disorders and Treatments Open access
Anne de Vaan, Jeroen C.J. Eikenboom, Marieke J.H.A. Kruip, Marieke C. Punt, Saskia E.M. Schols, Floor C. J. I. Heubel-Moenen, +10 more
4citations -
Postpartum Hemorrhage in Women with Von Willebrand Disease after Enhanced Prophylactic Clotting Factor Suppletion: The Pregnancy and Inherited Bleeding Disorders Study (PRIDES)
Anne de Vaan, Jeroen C.J. Eikenboom, Marieke J.H.A. Kruip, Marieke C. Punt, Michiel Coppens, Laurens Nieuwenhuizen, +10 more
2citations -
Enhanced peripartum hemostatic management does not decrease postpartum hemorrhage incidence in hemophilia carriers: the Pregnancy and Inherited Bleeding Disorders study2026 Journal of Thrombosis and Haemostasis article Medicine Hemophilia Treatment and Research Open access
Anne de Vaan, MJHA Kruip, Jeroen C.J. Eikenboom, Marieke C. Punt, Michiel Coppens, Laurens Nieuwenhuizen, +10 more
1citations