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Fostering continuous quality improvement in a European rare disease network: Where are we now?2026 Orphanet Journal of Rare Diseases review Health Professions Healthcare Quality and Management Open access
Linde Margriet van der Kamp, Sara Roman Galdran, Willemijn F. E. Irvine, Daniel Rossi, Romee van Steekelenburg, ERNICA Representatives, +3 more
1citations -
Sensitivity to change in well‐being and health‐related quality of life in adults with eating disorder symptoms: ICECAP‐A versus EQ‐5D‐5L2024 International Journal of Eating Disorders article Economics, Econometrics and Finance Health Systems, Economic Evaluations, Quality of Life Open access
Fleur E. van Kaam, Pieter J. Rohrbach, M. Elske van den Akker‐van Marle, Eric F. van Furth, Alexandra E. Dingemans
1citations -
AB1177 METHODOLOGICAL ASPECTS OF DESIGN, ANALYSES AND REPORTING OF STUDIES WITH WORK PARTICIPATION AS OUTCOME DOMAIN IN PATIENTS WITH INFLAMMATORY ARTHRITIS: RESULTS OF TWO SYSTEMATIC LITERATURE REVIEWS INFORMING EULAR POINTS TO CONSIDER2020 Annals of the Rheumatic Diseases review Decision Sciences Meta-analysis and systematic reviews Open access
Alessia Alunno, Mary Lucy Marques, Annelies E. R. C. H. Boonen, Louise Falzon, S. Ramiro, Polina Putrik
0citations -
P1683: THE EORTC QLQ-HL27: EORTC PROSPECTIVE INTERNATIONAL VALIDATION OF A DISEASE-SPECIFIC QUESTIONNAIRE FOR ASSESSMENT OF HEALTH-RELATED QUALITY OF LIFE IN PATIENTS WITH HODGKIN LYMPHOMA
Simone Oerlemans, Fabio Efficace, Omar M. Shamieh, Corine De Jong, Dong Dong, Jens Lehmann, +18 more
0citations -
Three-year quality of life and its effect on functional limitation and anticoagulation adherence in patients with acute pulmonary emboli2023 European Heart Journal article Medicine Venous Thromboembolism Diagnosis and Management Open access
Mahsa Mohammadi, Kasra Mehdizadeh, Melody Farrashi, Mona Naghshbandi, Jamal Moosavi, Bahram Mohebbi, +4 more
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Sleep quality and nocturnal pain in patients with elbow disorders: a prospective multicenter study2026 Journal of Orthopaedics and Traumatology article Psychology Sleep and related disorders Open access
Marco M. Schneider, Rainer Nietschke, Fillipo Migliorini, Christian Schoch, Klaus J. Burkhart, Boris Hollinger, +3 more
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The influence of structured reporting on inter-rater reliability of head and neck sonography2021 Laryngo-Rhino-Otologie conference-paper Medicine Ultrasound in Clinical Applications Open access
Benjamin Philipp Ernst, Alessandro Bozzato, Sebastian Strieth, Jennis Gabrielpillai, MF Froelich, Benedikt Kramer, +6 more
0citations -
Mapping health-related quality of life after kidney transplantation by group comparisons: a systematic review2021 Nephrology Dialysis Transplantation review Medicine Renal Transplantation Outcomes and Treatments Open access
Yiman Wang, Marc H. Hemmelder, Willem Jan W. Bos, Jaapjan D. Snoep, Aiko P. J. de Vries, Friedo Wilhelm Dekker, +1 more
103citations -
Beyond Survival: Assessing Quality of Life, Activity Level, and Ethnic Diversity in Aortic Dissection Survivors2025 Journal of Cardiovascular Development and Disease article Medicine Aortic Disease and Treatment Approaches Open access
Nora Bacour, Olivia van Erp, Simran Grewal, Aytug U. Tirpan, Susanne Eberl, Kak Khee Yeung, +5 more
7citations -
Long‐term quality of life and cost‐effectiveness of treatment of partial thickness burns: A randomized controlled trial comparing enzyme alginogel vs silver sulfadiazine (FLAM study)
Z.M. Rashaan, Pieta Krijnen, Kelly A.A. Kwa, Margriet Elisabeth van Baar, Roelf Simon Breederveld, M. Elske van den Akker‐van Marle
12citations -
Psychometric properties of the German Stroke and Aphasia Quality of Life Scale 39 generic version2025 European Journal of Physical and Rehabilitation Medicine article Medicine Stroke Rehabilitation and Recovery Open access
Caterina Breitenstein, Katerina Hilari, Annette Baumgaertner, Tanja Grewe, Agnes Flöel, Wolfram Ziegler, +6 more
4citations -
Development of quality indicators for hand osteoarthritis care – Results from an European consensus study2025 Osteoarthritis and Cartilage Open article Social Sciences Delphi Technique in Research Open access
Daniel Huseby Bordvik, Yeliz Prior, Rachael Bamford, Françis Berenbaum, Mathilda Björk, Thalita Blanck, +12 more
1citations