Papers matching “data collection standardization” 41
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Continuity of care in Klinefelter syndrome: age-adapted modules for standardized clinical data collection (I-KS)2025 Endocrine Connections article Health Professions Adolescent and Pediatric Healthcare Open access
Corinna Grasemann, Claus Højbjerg Gravholt, Lise Aksglæde, Angela Katrina Lucas-Herald, Malika Alimussina, Claudia Boettcher, +9 more
3citations -
Using Existing Clinical Information Models for Dutch Quality Registries to Reuse Data and Follow COUMT Paradigm2023 Applied Clinical Informatics article Health Professions Electronic Health Records Systems Open access
Maike H. J. Schepens, Annemarie C. Trompert, Miranda L. van Hooff, Erik van der Velde, Marjon Kallewaard, Iris J. A. M. Verberk-Jonkers, +5 more
1citations -
Repurposing Registries: Completeness of Real‐World Data for Regulatory and HTA Purposes in Three Cancer‐Focused Registries2026 Clinical Pharmacology & Therapeutics article Health Professions Electronic Health Records Systems Open access
Manon C. Wilpshaar, Doranne L. Hilarius, Luísa Prada, Ansgar Weltermann, Christine Leopold
1citations -
An Electronic Health Record Text Mining Tool to Collect Real‐World Drug Treatment Outcomes: A Validation Study in Patients With Metastatic Renal Cell Carcinoma2020 Clinical Pharmacology & Therapeutics article Health Professions Electronic Health Records Systems Open access
Sylvia A. van Laar, Kim B. Gombert‐Handoko, Henk‐Jan Guchelaar, J. Zwaveling
48citations -
Data Resource Profile: Extramural Leiden University Medical Center Academic Network (ELAN)2024 International Journal of Epidemiology article Health Professions Medical Coding and Health Information Open access
Janet M Kist, Hedwig M. M. Vos, Rimke Cathelijne Vos, Albert T.A. Mairuhu, Jeroen Nathan Struijs, Robert R. J. M. Vermeiren, +10 more
25citations -
AKTIN Data Warehouse and Broker Release v1.62026 Zenodo (CERN European Organization for Nuclear Research) software Health Professions Electronic Health Records Systems Open access
Alexander Kombeiz, Raphael W. Majeed, Jonas Bienzeisler, Hauke Heidemeyer, Emily Wedek, Simon Hüning, +1 more
0citations -
Group consultations for socioeconomically vulnerable cardiometabolic risk groups: from implementation to integration into standard practice2026 International Journal of Integrated Care conference-abstract Health Professions Health Policy Implementation Science Open access
Jonne G. ter Braake, Eline Frouke de Vries, Sander Steenhuis, Annefrans F. T. M. van Ede, Tara Kwakkernaat, Maud J. Verhoeven, +2 more
0citations -
Esophageal cancer patients’ need for information and support in making a treatment decision between standard surgery and active surveillance2023 Cancer Medicine article Health Professions Patient-Provider Communication in Healthcare Open access
Merel Hermus, Berend J. van der Wilk, Rebecca Chang, Jan Willem T. Dekker, Peter‐Paul L. O. Coene, Grard A. P. Nieuwenhuijzen, +10 more
6citations -
From barriers to bridges: community researchers as methodological innovators in health intervention evaluation2026 Wellbeing Space and Society article Health Professions Community Health and Development Open access
Charlotte Wendelboe‐Nelson, Anissa Thabet Mammar, Lizzie Ashworth, Bailey Stevenson, Siân de Bell, Julius Cesar Alejandre, +10 more
0citations -
Coding systems and monitoring practices across the ERN ReCONNET: insights from a comprehensive survey and unmet needs2026 Orphanet Journal of Rare Diseases article Health Professions Medical Coding and Health Information Open access
Matilde Bandeira, Diana Marinello, Sofia Carvalho Barreira, Jutta Richter, Jeska Kirsten De Vries-Bouwstra, I. E. Lundberg, +24 more
0citations -
Electronic health records (EHRs) in clinical research and platform trials: Application of the innovative EHR-based methods developed by EU-PEARL2023 Journal of Biomedical Informatics article Health Professions Electronic Health Records Systems Open access
Giulia Lombardo, Camille Couvert, Melisa Kose, Amina Begum, Cécile Spiertz, Courtney Worrell, +19 more
23citations -
Surgical team dynamics in a reflective team meeting to improve quality of care: qualitative analysis of a shared mental model2023 British journal of surgery article Health Professions Patient Safety and Medication Errors Open access
Merel J. Verhagen, Marit S. de Vos, Jan van Schaik, Joost R. van der Vorst, Abbey Schepers, Perla J. Marang‐van de Mheen, +1 more
7citations -
Coded diagnoses from general practice electronic health records are a feasible and valid alternative to self-report to define diabetes cases in research2020 Primary care diabetes article Health Professions Medical Coding and Health Information Open access
Anna W de Boer, Jeanet W. Blom, Margot W. M. de Waal, Ralph C. A. Rippe, Eelco J.P. de Koning, Ingrid M. Jazet, +4 more
7citations