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The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes2020 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access
Salma Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L T van den Akker, +10 more
52citations -
Governance of Citizen Science Networks/Platforms: Shared Experiences2026 Zenodo (CERN European Organization for Nuclear Research) report Computer Science Research Data Management Practices Open access
Daniel Dörler, Annelies Duerinckx, Margaret M. Gold, Andrzej Klimczuk, Cristina Luı́s, Andrea Sforzi, +5 more
0citations -
Working across Scales: Shared Building-Blocks of a Sustainable Infrastructure Environment for Bio/Geodiversity Data2025 Biodiversity Information Science and Standards article Computer Science Research Data Management Practices Open access
Jutta Buschbom, James Macklin, Deborah Paul, Elizabeth R. Ellwood, Alina Freire‐Fierro, Wouter Addink, +6 more
0citations
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