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The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience2025 Journal of Neuromuscular Diseases article Computer Science Research Data Management Practices Open access
Nawel Lalout, Mark D. Wilkinson, Dagmar Wandrei, Adrian Tassoni, António Atalaia, Alberto Cámara Ballesteros, +11 more
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