Papers matching “clinical data interoperability” 11
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A framework for sharing of clinical and genetic data for precision medicine applications2024 Nature Medicine article Computer Science Blockchain Technology Applications and Security Open access
Ulugbek K. Baymuradov, Ernest Fraenkel, Lyle W. Ostrow, Andrea Malaspina, Pietro Fratta, Jennifer E. Phillips‐Cremins
37citations -
De-novo FAIRification via an Electronic Data Capture system by automated transformation of filled electronic Case Report Forms into machine-readable data2021 Journal of Biomedical Informatics article Computer Science Research Data Management Practices Open access
Martijn G. Kersloot, Annika Jacobsen, Karlijn H.J. Groenen, Bruna dos Santos Vieira, Rajaram Kaliyaperumal, Ameen Abu–Hanna, +5 more
28citations -
The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes2020 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access
Salma Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L T van den Akker, +10 more
52citations -
How Patient Organizations Can Drive FAIR Data Efforts to Facilitate Research and Health Care: A Report of the Virtual Second International Meeting on Duchenne Data Sharing, March 3, 20212021 Journal of Neuromuscular Diseases article Computer Science Research Data Management Practices Open access
Nawel Lalout, Γεώργιος Παλιούρας, Elizabeth Vroom, Peter A.C. ’t Hoen, Marco Roos
20citations -
European cancer data sharing: Analyses of an international survey2026 International Journal of Medical Informatics article Computer Science Research Data Management Practices Open access
Larson Hogstrom, Arvydas Laurinavičius, Miguel Giraldez-Álvarez, Sigve Nakken, Ingrid Jenny Guldvik, Carlos Míguez Sánchez, +7 more
0citations -
The challenges of research data management in cardiovascular science: a DGK and DZHK position paper—executive summary2023 Clinical Research in Cardiology article Computer Science Research Data Management Practices Open access
Sabine Steffens, Katrin Schröder, Martina Krüger, Christoph Maack, Katrin Streckfuß‐Bömeke, Johannes Backs, +19 more
9citations -
Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries2022 Orphanet Journal of Rare Diseases article Computer Science Research Data Management Practices Open access
Bruna dos Santos Vieira, César H. Bernabé, Shuxin Zhang, Haitham Abaza, Nirupama Benis, Alberto Cámara, +9 more
41citations -
Applying the FAIR principles to data in a hospital: challenges and opportunities in a pandemic2022 Journal of Biomedical Semantics article Computer Science Research Data Management Practices Open access
Núria Queralt-Rosiñach, Rajaram Kaliyaperumal, César H. Bernabé, Qinqin Long, Simone A. Joosten, Erik L.A. Flikkenschild, +3 more
67citations -
NeuroFAIR curator: an AI-assisted framework for metadata enrichment, quality screening, curation prioritization, and FAIR readiness of brain tumor MRI data2026 Frontiers in Neuroinformatics article Computer Science Research Data Management Practices Open access
Faizan Ullah, Zaheer Abbas, Mohmmad Abrar, Farhan Amin, N. Jon Shah
0citations -
Knowledge Representation of a Multicenter Adolescent and Young Adult Cancer Infrastructure: Development of the STRONG AYA Knowledge Graph2026 JCO Clinical Cancer Informatics article Computer Science Semantic Web and Ontologies Open access
Joshi Hogenboom, Varsha Gouthamchand, Charlotte Cairns, Silvie H. M. Janssen, Kirsty M. Way, Andre L.A.J. Dekker, +6 more
0citations
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