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The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes2020 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access
Salma Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L T van den Akker, +10 more
52citations -
The Quality Evaluation of Rare Disease Registries—An Assessment of the Essential Features of a Disease Registry2021 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access
Salma Ali, Jillian Bryce, Yllka Kodra, Domenica Taruscio, Luca Persani, S. Faisal Ahmed
23citations -
Metadata for Data dIscoverability aNd Study rEplicability in obseRVAtional Studies (MINERVA): Development and Pilot of a Metadata List and Catalogue in Europe2024 Pharmacoepidemiology and Drug Safety article Computer Science Research Data Management Practices Open access
Romin Pajouheshnia, Rosa Gini, Lia Gutiérrez, Morris A. Swertz, Eleanor Hyde, Miriam Sturkenboom, +40 more
10citations -
DiSSCo Prepare Project: Increasing the Implementation Readiness Levels of the European Research Infrastructure2023 Research Ideas and Outcomes article Computer Science Research Data Management Practices Open access
Dimitrios Koureas, Laurence Livermore, Eva Alonso, Wouter Addink, Maria Judite Alves, Ana Casino, +12 more
5citations -
Edaphobase 2.0: Advanced International Data Warehouse for Collating and Using Soil Biodiversity Datasets2024 SSRN Electronic Journal preprint Computer Science Research Data Management Practices Open access
David J. Russell, E. Naudts, Nadia Soudzilovskaia, María J.I. Briones, Erminia Conti, Jérôme Cortet, +20 more
5citations -
DiSSCo Prepare Project: Increasing the Implementation Readiness Levels of the European Research Infrastructure2023 Research Ideas and Outcomes article Computer Science Research Data Management Practices Open access
Dimitrios Koureas, Laurence Livermore, Eva Alonso, Wouter Addink, Ana Casino
3citations -
Transparency and Involvement of the Energy-Related Industry in a Data Sharing Platform2023 Proceedings of the Conference on Research Data Infrastructure conference-paper Computer Science Research Data Management Practices Open access
Zhiyu Pan, Gonca Gürses-Tran, Christina Speck, Patrick Jaquart, Michael Niebisch, Antonello Monti
3citations -
Schema-Driven Interoperability of Biomedical Data Resources for Improved Knowledge Dissemination and Reuse2026 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access
Egon Willighagen, Tooba Abbassi‐Daloii, Anna Niehues, Magnus Palmblad, Hailiang Mei, Eleni Mina, +2 more
2citations -
odML-Tables as a Metadata Standard in Microneurography2023 Studies in health technology and informatics book-chapter Computer Science Research Data Management Practices Open access
Alina Troglio, Aidan P. Nickerson, Fabian Schlebusch, Rainer Röhrig, James Philip Dunham, Barbara Namer, +1 more
2citations -
The Information Technology (IT) Infrastructure of the Multicenter Archipelago of Ovarian Cancer Research Biobank: A Potential Blueprint for Other Biobanks2024 Biopreservation and Biobanking article Computer Science Research Data Management Practices Open access
Hein S. Zelisse, Sander de Ridder, Mignon D J M van Gent, Constantijne Helene Mom, G. Bea A. Wisman, Eva‐Maria Roes, +20 more
2citations -
A Correlative Microscopy Dataset for Multimodal Data Fusion and Image Matching in Materials Science2026 Scientific Data data-paper Computer Science Advanced Image and Video Retrieval Techniques Open access
Ali Riza Durmaz, James D. Lamb, Kamilla Zaripova, Madeline Vailhe, Julia T. Pürstl, Justine Schulte, +3 more
1citations -
Opening Letter of RILEM TC SDM: The current situation of data and metadata management in construction materials research - Emerging demands and viable solutions2025 RILEM Technical Letters article Computer Science Research Data Management Practices Open access
Tanja Manninger, Fabien Georget, Túlio Honório, Gilberto Cidreira Keserle, Roman Wan‐Wendner, Sandra Conceição Barbosa Nunes
1citations -
Retaining and Enhancing Trust in the Chemical Sciences: A Call for Collaborative Action2026 Angewandte Chemie International Edition editorial Computer Science Research Data Management Practices Open access
Anne Nijs, Richard M. Hartshorn, Gerd Blanke, Ray Boucher, Ian J. Bruno, Mercè Crosas, +7 more
0citations -
Deliverable D1.3 - Data Management Plan2026 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access
Rita Clancy, María Martínez‐Ibáñez, Nicola Boaretto, Mattia Felice Palermo, Estibaliz Crespo, Elixabete Ayerbe, +10 more
0citations -
Deliverable D1.3 - Data Management Plan2026 Zenodo (CERN European Organization for Nuclear Research) article Computer Science Research Data Management Practices Open access
Clancy Rita, María Martínez‐Ibáñez, Nicola Boaretto, Mattia Felice Palermo, Estibaliz Crespo, Elixabete Ayerbe, +11 more
0citations