Meet NUM-ENRICH: A Collaborative National Effort to Extend and Harmonize Research Infrastructures Within the German Network University Medicine

Studies in health technology and informatics, vol. 336, pp. 1237–1241

Abstract

During the Corona Pandemic, the German Network University Medicine has established robust research data infrastructures for data and biospecimen-driven research. However, due to the fast set-up, realizing the full potential has been hindered by challenges, such as siloed and unharmonized data, varying data access procedures, and infrastructure-specific governance frameworks. These issues impede cross-infrastructure data sharing and interoperability and easy access. A collaborative, national effort involving all German University clinics and stakeholders in the health landscape will therefore work towards the harmonization of infrastructures, data pools, data handling procedures and governance frameworks. The ENRICH consortium is committed to maximise the value of NUM data and biosamples for the research community as a whole.

Authors 17

1. Dagmar Waltemath

   Universitätsmedizin Greifswald · Universität Greifswald

   Affiliation as printed

   Institute for Community Medicine, University Medicine Greifswald, Germany

2. Eric Frodl

   University Hospital Frankfurt

   Affiliation as printed

   University Medicine Frankfurt, Frankfurt, Germany

3. Gabriele Anton

   Bielefeld University

   Affiliation as printed

   Medical School OWL, Bielefeld University, Bielefeld, Germany

4. Oya Beyan

   University of Cologne

   Affiliation as printed

   Inst for Biomedical Informatics, University of Cologne, Germany

5. Peter Boor Aachen Institute of Pathology, University Clinic Aachen

   Universitätsklinikum Aachen · RWTH Aachen University

   Affiliation as printed

   Institute of Pathology, University Clinic Aachen, RWTH Aachen University, Germany

6. Andreas Michael Bucher

   University Hospital Frankfurt

   Affiliation as printed

   University Medicine Frankfurt, Frankfurt, Germany

7. Julia Dietz

   University Hospital Frankfurt

   Affiliation as printed

   University Medicine Frankfurt, Frankfurt, Germany

8. Sabine Hanß

   Universitätsmedizin Göttingen · Campus-Institut Data Science (CIDAS) · University of Göttingen

   Affiliation as printed

   University Medical Center Göttingen, CIDAS, University of Göttingen, Germany

9. Oliver Kohlbacher

   University of Tübingen

   Affiliation as printed

   Dept. of Computer Science & Inst. for Bioinformatics and Medical Informatics & Inst. for Translational Bioinformatics, University Tübingen, Germany

10. Dagmar Krefting

    Universitätsmedizin Göttingen · Campus-Institut Data Science (CIDAS) · University of Göttingen

    Affiliation as printed

    University Medical Center Göttingen, CIDAS, University of Göttingen, Germany

11. Torsten Leddig

    Universitätsmedizin Greifswald · Universität Greifswald

    Affiliation as printed

    Institute for Community Medicine, University Medicine Greifswald, Germany

12. Rüdiger Pryss

    University of Würzburg · Universitätsklinikum Würzburg

    Affiliation as printed

    Julius-Maximilians-Universität Würzburg, Würzburg, Germany

    University Hospital Würzburg, Würzburg, German

13. Martin Sedlmayr

    Technische Universität Dresden

    Affiliation as printed

    Institute for Medical Informatics and Biometry, TUD Dresden, Germany

14. Sylvia Thun

    Berlin Institute of Health at Charité - Universitätsmedizin Berlin

    Affiliation as printed

    Berlin Institute of Health at Charité – Universitätsmedizin Berlin

15. Sven Zenker

    University Hospital Bonn · Institut für Medizinische Biometrie, Informatik und Epidemiologie

    Affiliation as printed

    MWTek & Institute for Medical Biometry, Informatics, and Epidemiology& Dept. of Anesthesiology and Intensive Care Medicine, University Hospital Bonn, Germany

16. Sylke Ruth Zeißig

    University of Würzburg · Universitätsklinikum Würzburg

    Affiliation as printed

    Julius-Maximilians-Universität Würzburg, Würzburg, Germany

    University Hospital Würzburg, Würzburg, German

17. Thomas Ganslandt

    Universitätsklinikum Erlangen

    Affiliation as printed

    Erlangen University Hospital, Erlangen, Germany