A Calculator for the Maturity Model for Medical Patient Registries – Lessons Learned

Studies in health technology and informatics, vol. 331, pp. 102–111

Abstract

INTRODUCTION: Patient registries are an important resource for medical research and decision making. However, registry quality is difficult to assess due to their vast differences in structure and function. The Registry Maturity Model offers a way to self-assess the quality. STATE-OF-THE-ART: The Registry Maturity Model is an established approach to assessing registry maturity. However, its current implementation in Excel poses practical challenges in terms of scalability and accessibility for widespread use within the registry community. CONCEPT: To improve accessibility and scalability, we developed a publicly available and user-friendly web application. IMPLEMENTATION: The user interface of our application guides users through the quality attributes of the model via structured questions with predefined answer options. Inputs are instantly processed to calculate and visualize the maturity level across the various utility dimensions in real time. For continuity and reuse, the results can be saved and reused. LESSONS LEARNED: Our application aims to improve the model's usability, scalability and maintainability and makes it easier for stakeholders to evaluate a registries quality for their use purpose.

Authors 9

1. Tobias C. von Brevern Aachen Institute of Medical Informatics

   RWTH Aachen University · Universitätsklinikum Aachen

   Affiliation as printed

   Institute of Medical Informatics, University Hospital RWTH Aachen, Germany

2. Duc Bui Tien Aachen chair Institute of Aerospace Systems MAGMA Gießereitechnologie GmbH

   RWTH Aachen University · Magma (Germany)

   Affiliation as printed

   Chair and Institute of Aerospace Systems, RWTH Aachen University, Germany

   MAGMA Gießereitechnologie GmbH, Aachen, Germany

3. Marie Habermann Aachen IT centre MAGMA Gießereitechnologie GmbH

   RWTH Aachen University · Magma (Germany)

   Affiliation as printed

   MAGMA Gießereitechnologie GmbH, Aachen, Germany

   IT Center, RWTH Aachen University, Aachen, Germany

4. Bogdan Noskov Aachen chair IT centre Institute of Structural Analysis and Dynamics

   RWTH Aachen University

   Affiliation as printed

   IT Center, RWTH Aachen University, Aachen, Germany

   Chair and Institute of Structural Analysis and Dynamics, RWTH Aachen University, Aachen, Germany

5. Lucas Pilz Aachen Institute of Medical Informatics chair Institute of Structural Analysis and Dynamics

   RWTH Aachen University · Universitätsklinikum Aachen

   Affiliation as printed

   Chair and Institute of Structural Analysis and Dynamics, RWTH Aachen University, Aachen, Germany

   Institute of Medical Informatics, University Hospital RWTH Aachen, Germany

   TMF e.V., Berlin, Germany

6. Jonas Bienzeisler Aachen Institute of Medical Informatics

   RWTH Aachen University · Universitätsklinikum Aachen

   Affiliation as printed

   Institute of Medical Informatics, University Hospital RWTH Aachen, Germany

   TMF e.V., Berlin, Germany

7. Anna Niemeyer Aachen Institute of Medical Informatics

   RWTH Aachen University · Universitätsklinikum Aachen

   Affiliation as printed

   TMF e.V., Berlin, Germany

   Institute of Medical Informatics, University Hospital RWTH Aachen, Germany

8. Rainer Röhrig Aachen Institute of Medical Informatics

   RWTH Aachen University · Universitätsklinikum Aachen

   Affiliation as printed

   Institute of Medical Informatics, University Hospital RWTH Aachen, Germany

   TMF e.V., Berlin, Germany

9. Raphael W. Majeed Aachen Institute of Medical Informatics

   RWTH Aachen University · Universitätsklinikum Aachen

   Affiliation as printed

   Institute of Medical Informatics, University Hospital RWTH Aachen, Germany