Scoping review indicates heterogeneous methods for developing and integrating patient decision aids in the context of clinical practice guidelines
Journal of Clinical Epidemiology, vol. 181, pp. 111708
Abstract
OBJECTIVES: To review the methods used to develop and integrate patient decision aids (PDAs) based on the recommendations of clinical practice guidelines (CPGs). STUDY DESIGN AND SETTING: We conducted a scoping review covering bibliographic databases (PubMed, Embase; searched until December 2023), gray literature, references, and expert consultations to identify eligible documents. Documents published from 2000 onwards and describing methods related to guideline-based PDA development or linking CPGs and PDAs were included. Two reviewers independently selected and analyzed the documents. Results were synthesized and presented narratively. RESULTS: Based on 24 included documents, we categorized their methods into 4 topics. For topic (1), the selection of CPG recommendations for which PDAs are (most) needed, we found a total of 14 selection factors across n = 11 documents, with uncertainty/variability in patient preferences and trade-offs between options being the most frequently mentioned. Topic (2) (n = 24) covers methods for developing and/or updating guideline-based PDAs, such as forming a multidisciplinary development group, using CPGs and their evidence summaries along with other sources as the evidence base, and using digital solutions for semi-automated development and updating. Topic (3) (n = 12) covers methods for PDA quality assessment and/or user testing, such as finalizing and approving the PDAs after a review and feedback process from the CPG group and an iterative user testing process. Topic (4) (n = 20) covers methods for linking CPGs and PDAs, often through digital strategies. CONCLUSION: We identified heterogeneous methods for developing and integrating PDAs based on CPG recommendations. Empirical testing is required to determine the most useful and practically feasible (combination of) methods. CPG organizations should focus on establishing adequate methods for linking CPG and PDA development to foster shared decision-making.
Authors 17
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Lena Fischer corresponding
Medizinische Hochschule Brandenburg Theodor Fontane
Affiliation as printed
Faculty of Health Sciences Brandenburg, Institute for Health Services and Health System Research, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany; Center for Health Services Research, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany. Electronic address: Lena.Fischer@mhb-fontane.de
Institute for Health Services and Health System Research, Faculty of Health Sciences Brandenburg, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany; Center for Health Services Research, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany. Electronic address: Lena.Fischer@mhb-fontane.de
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Affiliation as printed
Share to Care, Patient-Centered Care GmbH, Cologne, Germany
SHARE TO CARE. Patient-centered care GmbH, Cologne, Germany
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University Hospital Schleswig-Holstein
Affiliation as printed
Share to Care, Patient-Centered Care GmbH, Cologne, Germany; National Competency Center for Shared Decision Making, University Hospital Schleswig-Holstein, Kiel, Germany
SHARE TO CARE. Patient-centered care GmbH, Cologne, Germany; National Competency Center for Shared Decision Making, University Hospital Schleswig-Holstein, Kiel, Germany
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Medizinische Hochschule Brandenburg Theodor Fontane
Affiliation as printed
Faculty of Health Sciences Brandenburg, Institute for Health Services and Health System Research, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany
Institute for Health Services and Health System Research, Faculty of Health Sciences Brandenburg, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany
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German Agency for Quality in Medicine
Affiliation as printed
German Agency for Quality in Medicine (ÄZQ), Berlin, Germany
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Affiliation as printed
CGS Clinical Guideline Services GmbH, Berlin, Germany
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Affiliation as printed
German Network for Evidence-based Medicine (EbM-Network), Berlin, Germany
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Medizinische Hochschule Brandenburg Theodor Fontane
Affiliation as printed
Faculty of Health Sciences Brandenburg, Institute for Health Services and Health System Research, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany
Institute for Health Services and Health System Research, Faculty of Health Sciences Brandenburg, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany
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Universidad de Antioquia · McMaster University
Affiliation as printed
Department of Pediatrics, University of Antioquia, Medellin, Colombia; Pediatric Intensive Care Unit, Clínica Las Américas-AUNA, Medellin, Colombia; School of Rehabilitation Science, McMaster University, Hamilton, Canada
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National Institute for Health and Care Excellence
Affiliation as printed
National Institute for Health and Care Excellence (NICE), Manchester, United Kingdom
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Sichuan University · West China Hospital of Sichuan University
Affiliation as printed
Department of Endocrinology and Metabolism, Cochrane China Centre, MAGIC China Centre, Chinese Evidence-Based Medicine Centre, West China Hospital, Sichuan University, Chengdu, China
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Universidade de Santiago de Compostela
Affiliation as printed
General Surgery Department, Hospital Público Verín, Ourense, Spain; Department of General Surgery, University of Santiago de Compostela, Santiago de Compostela, Spain; Deontological Committee of the College of Physicians of Ourense, Ourense, Spain; Healthcare Ethics Committee of Ourense, Ourense, Spain
General Surgery Department. Hospital Público Verín, Ourense, Spain; Department of General Surgery. University of Santiago de Compostela, Spain; Deontological Committee of the College of Physicians of Ourense, Spain; Healthcare Ethics Committee of Ourense, Spain
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Affiliation as printed
Health Evidence Synthesis, Recommendations and Impact (HESRI), School of Public Health, University of Adelaide, Adelaide, Australia
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Affiliation as printed
Evaluation Unit (SESCS), Canary Islands Health Service (SCS), Tenerife, Spain; Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), Tenerife, Spain; Spanish Network of Agencies for Assessing National Health System Technologies and Performance (RedETS), Tenerife, Spain
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Catholic University of Croatia
Affiliation as printed
Center for Evidence-Based Medicine and Healthcare, Catholic University of Croatia, Zagreb, Croatia
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Anne Margarethe Stiggelbout Aachen
Leiden University Medical Center · Erasmus University Rotterdam
Affiliation as printed
Medical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands; Erasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, The Netherlands
Medical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, Netherlands; Erasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, Netherlands
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Medizinische Hochschule Brandenburg Theodor Fontane
Affiliation as printed
Faculty of Health Sciences Brandenburg, Institute for Health Services and Health System Research, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany; Center for Health Services Research, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany
Institute for Health Services and Health System Research, Faculty of Health Sciences Brandenburg, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany; Center for Health Services Research, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany
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