Patient-Reported Experience Measures to Evaluate Digitally Supported Care Processes for Heart Failure: A Scoping Review

Studies in health technology and informatics, vol. 317, pp. 305–313

Abstract

INTRODUCTION: The integration of Patient-Reported Experience Measures (PREM) alongside traditional clinical outcomes is crucial for improving quality of care. Although PREMs are frequently measured in inpatient treatment settings, they are rarely employed in digitally supported care processes or longitudinal assessment of care pathways. METHODS: To gain an overview of PREMs used to cover patients' experiences with digitally supported care processes in heart failure (HF), a scoping review was conducted in Medline. RESULTS: Out of 538 publications, 29 were identified that focus on PREMs in digitally supported care processes across 9 unspecific and 14 disease-specific groups, with 5 manuscripts focusing on HF. PREMs were mostly assessed using self-developed, study-specific questionnaires lacking standardization and validity. In total, 9 PREM dimensions and 25 sub-dimensions were identified. This included care delivery, privacy, physician-patient relationship, involvement, administration, information, knowledge, technology, and experiences in general. CONCLUSION: The findings suggest that the relevance of different dimensions assessed depends largely on the type of care rather than the underlying chronic disease.

Authors 5

1. Bianca Steiner

   Hochschule Hannover

   Affiliation as printed

   German Foundation for the Chronically Ill, Berlin, Germany

   University of Applied Sciences and Arts, Faculty III – Media, Information and Design, Hanover, Germany

2. Yalda Azizi

   Hochschule Hannover

   Affiliation as printed

   University of Applied Sciences and Arts, Faculty III – Media, Information and Design, Hanover, Germany

3. Marlo Verket Aachen Department of Internal Medicine I Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Department of Internal Medicine I, Medical Faculty, RWTH Aachen University, Aachen, Germany

4. Benoît Tyl
   Affiliation as printed

   Bayer Healthcare SAS, Loos, France

5. Bettina Zippel‐Schultz
   Affiliation as printed

   German Foundation for the Chronically Ill, Berlin, Germany