236 What is the benefit of shared decision-making? Towards a consensus statement symposium
Abstract
Introduction The German health technology assessment (HTA) agency Institute for Quality and Efficiency in Health Care (IQWiG) has recently published a preliminary HTA report on benefits and risks of shared deci-sion- making (SDM). It concludes there is no proven effect of SDM regarding morbidity, mortality, or health related quality of life. Therefore, it did not derive a benefit of SDM. By contrast, the British National Institute for Health and Care Excellence (NICE) came to the opposite conclusion in its SDM guideline 2021. Based on two systematic reviews, it recommends implementa- tion of training for professionals, decision aids, and to embed SDM in organizational culture and prac- tices. Reports from National HTA institutions have major impact on legislation, funding, and adoption of in- terventions such as SDM. Having a consensus on appropriate outcomes and assessment measures is vital for the cause of SDM. The aim of the symposium is to present the considerations of interna-tional players in the last months, to collect further arguments and to adopt a joint statement. Structure Introduction: IQWiG report and its conclusions Presentations of international viewpoints reactions from German professional organizations perspectives of patients and clinicians perspective of the national health services (value based healthcare, quality management, core outcome sets, etc.) ethical and legal perspective methodological viewpoints (logic models, outcome and study type issues) Interactive discussion: shaping the future of SDM outcome definition and assessment Building consensus: Towards an ISDM Society consensus statement Expected Results The symposium results will be transferred into a consensus paper on whether and, if so, how benefit assessment of SDM regarding outcomes and measures should be done. This can inform future bene- fit assessments and provide a solid basis for implementation of SDM. It will also identify research gaps regarding outcome definition and evaluation measures needing attention from the research community.
Authors 14
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University Hospital Schleswig-Holstein
Affiliation as printed
National Competency Center for Shared Decision Making, University Hospital Schleswig-Holstein, Kiel, Germany
SHARE TO CARE. Patientenzentrierte Versorgung GmbH, Cologne, Germany
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Affiliation as printed
Evaluation Unit (SESCS), Canary Islands Health Service (SCS), Tenerife, Spain
Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), Madrid, Spain
The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), Madrid, Spain
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Affiliation as printed
Department of Cancer Education and Prevention, Fundación Arturo López Pérez, Chile
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Affiliation as printed
Sydney Health Literacy Lab, School of Public Health, University of Sydney, NSW 2006 Australia
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Dartmouth Institute for Health Policy and Clinical Practice · University College London
Affiliation as printed
Scientific Institute for Quality of Healthcare, University Nijmegen Medical Centre, Netherlands
The Dartmouth Institute for Health Policy and Clinical Practice, USA
University College London, UK
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Affiliation as printed
Department of Value Based Improvement, St. Antonius Ziekenhuis: Nieuwegein, Netherlands
Scientific Institute for Quality of Healthcare, University Nijmegen Medical Centre, Netherlands
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University of Massachusetts Chan Medical School · Veterans Health Administration · VA New England Healthcare System · Center for Health Optimization and Implementation Research
Affiliation as printed
Center for Healthcare Organization and Implementation Research (CHOIR), Veterans Administration, Bedford, Massachusetts, USA
Department of Population and Quantitative Health Sciences, University of Massachusetts Chan Medical School, Worcester, Massachusetts, USA
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University of Southern Denmark · Vejle Sygehus · Lillebaelt Hospital
Affiliation as printed
Center for Shared Decision Making, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark
Department of Regional Health Research, University of Southern Denmark, Odense, Denmark
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University of Oslo · Leiden University Medical Center
Affiliation as printed
Department of Biomedical Data Sciences, Leiden University Medical Center, The Netherlands
Faculty of Medicine, University of Oslo, Norway
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Affiliation as printed
University College London, UK
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Affiliation as printed
Division of Population Medicine, PRIME Centre UK
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Affiliation as printed
SHARE TO CARE. Patientenzentrierte Versorgung GmbH, Cologne, Germany
TAKEPART Media + Science GmbH, Cologne, Germany
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University Medical Center Hamburg-Eppendorf
Affiliation as printed
Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Germany
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University Hospital Schleswig-Holstein
Affiliation as printed
National Competency Center for Shared Decision Making, University Hospital Schleswig-Holstein, Kiel, Germany
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