Local Approval Processes in a Federated and Distributed Research Infrastructure – Lessons Learned from the AKTIN-Project

Studies in health technology and informatics, vol. 302, pp. 362–363

Abstract

The AKTIN-Emergency Department Registry is a federated and distributed health data network which uses a two-step process for local approval of received data queries and result transmission. For currently establishing distributed research infrastructures, we present our lessons learned from 5 years of established operations.

Authors 5

1. Alexander Kombeiz corresponding Aachen Institute of Medical Informatics Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Institute of Medical Informatics, Medical Faculty of RWTH Aachen, Aachen, Germany

2. Jonas Bienzeisler Aachen Institute of Medical Informatics Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Institute of Medical Informatics, Medical Faculty of RWTH Aachen, Aachen, Germany

3. Saskia Ehrentreich

   Otto-von-Guericke-Universität Magdeburg

   Affiliation as printed

   Department of Trauma Surgery, Otto von Guericke University, Magdeburg, Germany

4. Rainer Röhrig Aachen Institute of Medical Informatics Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Institute of Medical Informatics, Medical Faculty of RWTH Aachen, Aachen, Germany

5. Raphael W. Majeed Aachen Institute of Medical Informatics Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Institute of Medical Informatics, Medical Faculty of RWTH Aachen, Aachen, Germany