December 23, 2022 article Open access Hereditary Endocrine Tumor Registries Journal of the Endocrine Society DOI: 10.1210/jendso/bvac194 Full text (OA) OpenAlex Authors 0 Author list not loaded yet. Cited by 0 stored of 0 References 4 Search Sort Most cited Newest Oldest Patent citations Title Any typearticle review book-chapter conference-paper preprint dissertation book dataset other Any fieldAgricultural and Biological Sciences Arts and Humanities Biochemistry, Genetics and Molecular Biology Business, Management and Accounting Chemical Engineering Chemistry Computer Science Decision Sciences Dentistry Earth and Planetary Sciences Economics, Econometrics and Finance Energy Engineering Environmental Science Health Professions Immunology and Microbiology Materials Science Mathematics Medicine Neuroscience Nursing Pharmacology, Toxicology and Pharmaceutics Physics and Astronomy Psychology Social Sciences Veterinary Open access The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes 2020 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access 52 citations Supporting international networks through platforms for standardised data collection—the European Registries for Rare Endocrine Conditions (EuRRECa) model 2021 Endocrine article Health Professions Electronic Health Records Systems Open access 25 citations The Quality Evaluation of Rare Disease Registries—An Assessment of the Essential Features of a Disease Registry 2021 International Journal of Environmental Research and Public Health article Computer Science Research Data Management Practices Open access 23 citations An overview of clinical activities in Endo-ERN: the need for alignment of future network criteria 2020 European Journal of Endocrinology article Business, Management and Accounting Healthcare Systems and Technology Open access 20 citations 4 results