Implementing Palliative Care Teams Specialized in Dementia in Two Countries: Experiences of Failure and Success

Journal of Alzheimer s Disease, vol. 91, pp. 551–557

Abstract

Much is known about palliative care needs of persons with dementia and their family. Less is known about how to successfully implement models that address those needs. We present specialist models in the Netherlands (2017-2018) and Northern Ireland (2016-2017) contrasting its evaluations. From implementation failure in the Netherlands compared with successful implementation in Northern Ireland, we learn that recognizing roles and competencies among all involved is essential in developing effective partnership relationships. All of this is facilitated by referral before the end of life and offering various training programs and in-patient and out-patient services and therapies to show benefits early.

Authors 9

1. Jenny Theodora van der Steen corresponding Aachen Department of Public Health and Primary Care

   Leiden University Medical Center · Radboud University Medical Center

   Affiliation as printed

   Department of Primary and Community Care, Radboud university medical center, Nijmegen, The Netherlands

   Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands

2. Carolien A. van Leussen
   Affiliation as printed

   Tao of Care, Amsterdam, The Netherlands

3. Joanne Ballentine

   Northern Ireland Hospice

   Affiliation as printed

   Project Lead of Hospice Enabled Dementia Partnership, Northern Ireland Hospice, Belfast, Northern Ireland

4. Loretta Gribben

   Royal College of Nursing

   Affiliation as printed

   Policy and Practice Royal College of Nursing NI, Belfast, Northern Ireland

5. Joanne Reid

   Queen's University Belfast

   Affiliation as printed

   School of Nursing and Midwifery, Queen’s University Belfast, Belfast, Northern Ireland

   School of Nursing and Midwifery, Queen's University Belfast, Belfast, Northern Ireland

6. Felicity Hasson

   University of Ulster

   Affiliation as printed

   Institute of Nursing and Health Research, School of Nursing, Ulster University, Newtownabbey, Northern Ireland

7. Kevin Brazil

   Queen's University Belfast

   Affiliation as printed

   School of Nursing and Midwifery, Queen’s University Belfast, Belfast, Northern Ireland

   School of Nursing and Midwifery, Queen's University Belfast, Belfast, Northern Ireland

8. B. Anne-Mei The
   Affiliation as printed

   Tao of Care, Amsterdam, The Netherlands

9. Dorry McLaughlin

   Queen's University Belfast

   Affiliation as printed

   Formerly Lecturer in Palliative Care and Chronic Illness, School of Nursing and Midwifery & Centre for Evidence and Social Innovation, Queen’s University, Belfast, Northern Ireland

   E-mail: