A Federated and Distributed Data Management Infrastructure to Enable Public Health Surveillance from Intensive Care Unit Data

Studies in health technology and informatics, vol. 294, pp. 490–494

Abstract

The Robert Koch Institute (RKI) monitors the actual number of COVID-19 patients requiring intensive care from aggregated data reported by hospitals in Germany. So far, there is no infrastructure to make use of individual patient-level data from intensive care units for public health surveillance. Adopting concepts and components of the already established AKTIN Emergency Department Data registry, we implemented the prototype of a federated and distributed research infrastructure giving the RKI access to patient-level intensive care data.

Authors 12

1. Jonas Bienzeisler Aachen Institute of Medical Informatics Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Institute of Medical Informatics, Medical Faculty of RWTH Aachen, Aachen, Germany

2. Lucas Triefenbach Aachen Institute of Medical Informatics Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Institute of Medical Informatics, Medical Faculty of RWTH Aachen, Aachen, Germany

3. Alexander Kombeiz Aachen Institute of Medical Informatics Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Institute of Medical Informatics, Medical Faculty of RWTH Aachen, Aachen, Germany

4. Matthäus Lottes

   Robert Koch Institute

   Affiliation as printed

   Department of Methodology and Research Infrastructure, Robert Koch Institute, Berlin, Germany

5. Christopher Vogel

   Robert Koch Institute

   Affiliation as printed

   Department of Methodology and Research Infrastructure, Robert Koch Institute, Berlin, Germany

6. Linus Grabenhenrich

   Robert Koch Institute

   Affiliation as printed

   Department of Methodology and Research Infrastructure, Robert Koch Institute, Berlin, Germany

7. Theresa Kocher

   Robert Koch Institute

   Affiliation as printed

   Department of Methodology and Research Infrastructure, Robert Koch Institute, Berlin, Germany

8. Lukas Niekrenz Aachen Department of Pulmonology and Intensive Care Medicine Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Department of Pulmonology and Intensive Care Medicine, Medical Faculty of RWTH Aachen, Aachen, Germany

9. Michael Dreher Aachen Department of Pulmonology and Intensive Care Medicine Medical Faculty

   RWTH Aachen University

   Affiliation as printed

   Department of Pulmonology and Intensive Care Medicine, Medical Faculty of RWTH Aachen, Aachen, Germany

10. Christoph Müller Aachen Data Integration Center

    Universitätsklinikum Aachen · RWTH Aachen University

    Affiliation as printed

    Data Integration Centre (DIC), University Hospital RWTH Aachen, Aachen, Germany

11. Rainer Röhrig Aachen Institute of Medical Informatics Medical Faculty

    RWTH Aachen University

    Affiliation as printed

    Institute of Medical Informatics, Medical Faculty of RWTH Aachen, Aachen, Germany

12. Raphael W. Majeed Aachen Institute of Medical Informatics Medical Faculty

    RWTH Aachen University

    Affiliation as printed

    Institute of Medical Informatics, Medical Faculty of RWTH Aachen, Aachen, Germany