July 23, 2020 article Open access Standardized Data Structures in Rare Diseases: CDISC User Guides for Duchenne Muscular Dystrophy and Huntington’s Disease Clinical and Translational Science DOI: 10.1111/cts.12845 Full text (OA) OpenAlex Authors 0 Author list not loaded yet. Cited by 1 stored of 25 Search Sort Most cited Newest Oldest Patent citations Title Any typearticle review book-chapter conference-paper preprint dissertation book dataset other Any fieldAgricultural and Biological Sciences Arts and Humanities Biochemistry, Genetics and Molecular Biology Business, Management and Accounting Chemical Engineering Chemistry Computer Science Decision Sciences Dentistry Earth and Planetary Sciences Economics, Econometrics and Finance Energy Engineering Environmental Science Health Professions Immunology and Microbiology Materials Science Mathematics Medicine Neuroscience Nursing Pharmacology, Toxicology and Pharmaceutics Physics and Astronomy Psychology Social Sciences Veterinary Open access RareLink: scalable REDCap-based framework for rare disease interoperability linking international registries to FHIR and Phenopackets 2025 npj Genomic Medicine article Health Professions Electronic Health Records Systems Open access 4 citations 1 result References 0