April 23, 2018 review Open access Patient reported outcome measures in rare diseases: a narrative review Orphanet Journal of Rare Diseases DOI: 10.1186/s13023-018-0810-x Full text (OA) OpenAlex Authors 0 Author list not loaded yet. Cited by 3 stored of 238 Search Sort Most cited Newest Oldest Patent citations Title Any typearticle review book-chapter conference-paper preprint dissertation book dataset other Any fieldAgricultural and Biological Sciences Arts and Humanities Biochemistry, Genetics and Molecular Biology Business, Management and Accounting Chemical Engineering Chemistry Computer Science Decision Sciences Dentistry Earth and Planetary Sciences Economics, Econometrics and Finance Energy Engineering Environmental Science Health Professions Immunology and Microbiology Materials Science Mathematics Medicine Neuroscience Nursing Pharmacology, Toxicology and Pharmaceutics Physics and Astronomy Psychology Social Sciences Veterinary Open access Retinitis Pigmentosa: Current Clinical Management and Emerging Therapies 2023 International Journal of Molecular Sciences article Biochemistry, Genetics and Molecular Biology Retinal Development and Disorders Open access 123 citations Health‐related quality‐of‐life questionnaires for deep vein thrombosis and pulmonary embolism: A systematic review on questionnaire development and methodology 2021 Research and Practice in Thrombosis and Haemostasis review Medicine Venous Thromboembolism Diagnosis and Management Open access 17 citations European Reference Networks: challenges and opportunities 2021 Journal of Community Genetics article Biochemistry, Genetics and Molecular Biology Genomics and Rare Diseases Open access 80 citations 3 results References 0